Nicole - posted on 04/23/2011 ( 46 moms have responded )
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My four year old son has been diagnosed as autistic and ADHD. he is very agressive and never slows down. The ADHD is so bad that he is constantly hurting himself. He's on the go so fast he runs into walls and tables ect. He wont even slow down long enough to eat and you cant play with him at all because all he does is constantly run. The first medication his doctor tried was Vyvanse which was a nightmare, it made him alot worse. Three weeks ago she prescribed kapvay. He takes 0.1 mg in the morning and evening. I was really excited the first two weeks because it really seemed to be helping him slow down some. Now after the third week it's qiut doing anything. Any suggestions on what works for you kids with severe ADHD would be appreciated
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Kelly Sylvester - posted on 05/27/2013
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My 7.5 year old started Kapvay about 2 months ago. 1 mg am and 1 mg pm. He is diagnosed as ADHD, and ODD, but veering towards BPD (as noted by several other moms in this room-they do not like labeling children with BPD). This is the first medication he has ever taken; and, I have been extremely apprehensive about putting hime on medication. I didn't want to change his personality, even though he is a stubborn, and often difficult child, he is also extremely loving, and smart, and sassy...all green eyes, dimples, and freckles. The Kapvay has been an absolute godsend, if u will. School has said that he has done a 180, and at home things have become much easier. He is way less aggresive most of the time- you will deffintly see extreme changes though if you don't keep the medication on schedule because it drops off-and then they get grumpy/angry. I strongly reccomend this medication to anyone looking at meds for a varity of differant diagnoses in little boys surrounding ADHD; because it is a non-stimulent I felt that it was the best option for my child. It will make them sleepy at first- push through 2 weeks before you say No.
Deborah - posted on 01/07/2015
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As a mother of a 15 year old, ADHD, GAD, OCD, ODD son ,I have been through the medication trials many of you have. Because my son has other medical conditions, He has so many doctors and specialists and he began to become so understandably resistant to medications because of the many side effects. It seemed to me it was like tossing the dice, but it's too precarious a thing when your talking about a child's health and well being! Recently, we changed discovered through his new psychologist and psychiatrist that there is a thing called Gene Sight Testing. You do a two cotton swabs of the mouth and submit for evaluation.! If your insurance does not cover the company will work something out. This testing will tell you based on your child's dna analysis what medications are most likely to work for your child! Not too many people know of this because it's new but it's legitimate and I have found it invaluable. Think of taking the guess work out of it and having a reasonable expectation of what might actually be effective! Look it up. It's well worth it.
Brenda - posted on 02/02/2014
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I posted last spring when DS first started taking Kapvay and now that he has been on it for 10 months, I thought I would let you know how it is going. We started taking Kapvay .1mg. morning and evening last April because stimulant meds gave him horrible tics. Those tics are gone and his behavior is good. I will say that Kapvay does not give him the same level of control that Vyvanse did, but it is enough. He made the honor roll last semester and has not gotten in trouble at school at all this year. The sleepiness only lasted a short time and I have not seen any other side effects. So we are definitely pleased with this med. We are on the same dosage that we started with.
Brenda - posted on 04/29/2013
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Here is our Kapvay review: My son is on his 3rd week with Kapvay and so far, so good. It made him very sleepy at first, but that subsided after a few days. His tics (caused by various stimulant meds) were gone by week 2 and his behavior has been terrific, his teacher says he is almost back to the old (good on Vyvanse) behavior. No side effects noticed at all (other than initial sleepiness and an occasional nightmare). I hope it continues! My son takes .1mg in the am, and .1mg at night. No plans to increase the dose at this time.
Good luck!
Terri - posted on 09/10/2012
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Beth I have been there to. I had a teacher tell me that if I didn't get my son on meds he would not be allowed to attend school. It is like they force your hand in the matter. Do they not understand that the medications have permeant side effect. One time my sons appointment was 6 weeks later but the dr only gave 30 supply of medication. With him being off his medication I saw a side to my son I didn't like. As a matter of fact I was afraid for him and me. I called the dr and told them if they couldn't be consistent with the medications then I would find someone else. People outside throw stones, they have no idea what runs through the parents mind when they have a child that has been diagnosed. It is heart breaking and very emotional.