This is a group created for mothers that suffer from the terrible pain of Trigeminal Neuralgia. I hope to have open discussions to offer support and suggestions for dealing with pain.
Hi moms I was diagnosed with TN recently and I have a 2 month old infant. I was prescribed tegretol which I am hesitant to take as am breastfeeding I am therefore not taking...
Last update on 07/05/2017 by Shiru
Last update on 07/05/2017 by Shiru
I just had my MVD brain surgery for TN. Although not completely pain free yet, it's only been a few weeks, but I have greatly reduced my Tegretol levels from 1,800 mg a day...
Last update on 12/11/2012 by Saima
What do you do to deal with your pain? What things help distract you? What makes you feel better? The number one thing I have that helps is my Thermapack. It is a clay filled...
Last update on 07/11/2010 by Bonnie
Support and understanding is one of the hardest things a person has to deal with when living with chronic pain. I am lucky enough (or unlucky) to have a husband that suffers...
Last update on 07/11/2010 by Bonnie
Hi. I'm not a mom with TN, but I have a 5yo son that was diagnosed with TN 2 years ago. As it is very hard to find moms with children with this disorder, I thought maybe I could...
Last update on 05/24/2010 by Bonnie
I had my second block injection on Thursday. I felt pretty good Friday, but not so much since then. I am starting to worry that it did not work as well this time. Not only am I...
Last update on 04/11/2010 by Elaine
I had Genevieve on Monday and since Tuesday I have had to max out on my allowable medication to just barely keep my pain under control. If things do not improve by tomorrow I...
Last update on 11/15/2009 by Elaine
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