Celiac and Low muscle tone in toddler?

Heather - posted on 09/30/2009 ( 2 moms have responded )

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Does anyone have any knowledge or experience with low muscle tone and celiac being connected? My daughter has not been tested yet, but her father, grandfather, and two aunts have celiac. Three of the four of them have had the blood test and it was negative, but they have all the symptoms. I dont want to put my daughter on a gf diet, but I will if it would help. The has low muscle tone and did not walk until 22 months and crawled at 17 months. any ideas would be helpful. thanks

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Stacey - posted on 03/20/2010

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In my experience my son did everything within the normal amount of time maybe on the later end of the spectrum. Crawled by 9 or 10 months and walked at 13 months. He was tiny though and I did notice that his biceps were thinner than his forearms. He is still small for his age. He is still wearing 18 month bottoms and 18-24 month tops. He's not quite 2 1/2 yrs. Honestly, I've been under the impression that it can't be truly diagnosed without an endoscopy. You have to be eating gluten in order for the test to be accurate. Is she within normal growth range? My son was slowly going down the charts from 9 months to finally dropping completely off the charts at 18 months. He was diagnosed with Celiac at 23 months after positive blood test and endoscopy.

Crucita - posted on 10/08/2009

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All the articles I have read definitely find a correlation between the absortion of nutrients and celiac disease. If your baby has celiac she may not be absorbing all the necessary nutrients to help her grow. As a parent wouldn't you want to know asap, If its not celiac then you can continue to question her development with physicians. making adjustments to diet may just help her get back on track, but she needs you to figure it out and help her. Don't get a blood sample do a stool sample tests.

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