I am lucky!!! My 2 and a half year old only has ceoliac!!!!

Leeann - posted on 07/11/2009 ( 3 moms have responded )

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I guess u dont realise how lucky u really are!!!

When my son was diagnosed with ceoliac i thought god thats how do i cope,what do i do???? bad but then realise my god........there is cancer, those children in wheel chairs dribbling!! not sure of the illness (sorry)

I have it good...We are lucky.... I met a lady the other day her grandson is allergic to.........gluten,eggs,nuts,dairy,fish....I am so lucky...

Guess my point of posting this is always look up!!! There is someone worse off.. No matter how hard it gets!!! There is always this forum to spill ur guts!!!!!! ha ha ha...

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Sarah - posted on 08/12/2009

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You are sooo right, my 2 and a half year old has just been diagnosed a coeliac and she has asthma and is a left hander and has another thing called benign hyper-mobility joint syndrome (which really just means she's pretty flexible and is not problem, just sounds serious!) but she has been the happiest, most beautiful and relatively "healthy" girl. She actually doesn't have very strong immediate reactions to gluten. So yeah, I totally agree with you.

We only got the diagnosis this week, but have long suspected it, so we are still freaking out a bit about reading labels and just getting our head around it - but there is definitely so many worse things that can happen in life! I also agree with Amanda, about a few days before the endoscopy I though, oh my god, what if it ISN'T coeliacs! What else could it be!?!?!

Good luck guys and it's really nice to know that there are thousands of people (mums!) going through what I am/will be going through!

Ronda - posted on 08/04/2009

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I think all of us have had that , Oh NO experience when we were first told. I do remember one thing clearly tho, my daughter being so sickly for the first 2 years of her life and not knowing WHY. It's been 3 years now and I still make mistakes. Thankfully they are small mistakes and she's learning to ask questions herself. She starts kindergarten this year. That means training a new school, new teachers her needs. That's the hardest part now. I have to plan sick days for her knowing that mistakes will be made at school. I hope to one day be able to say I got it ALL straight but the hidden wheat and gluten in products can be confusing and until ALL labels have to list ALL products, I don't think she'll ever be perfectly healthy.

Amanda - posted on 07/25/2009

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I had a similar reaction. My daughter was just released form a 5 day hospital visit during which she was diagnosed with Celiac disease. When they confirmed the test results I said "Thank god" with a sigh of relief and they looked at me funny. I said "I've known for months there is something wrong with my daughter and what you just told me means, no surgery, no medication, no life threatening illness, just a contollable fix with a change of diet. I feel I've gotten the lesser of all evils." Although, I am still feeling a little confused and frightened and I'm stuck in that "Oh my god, what do I do, how do I adjust, how do I avoid making mistakes and putting her health in danger again?" state of mind.

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