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Roxane - posted on 01/19/2009 ( 2 moms have responded )

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I'm a mom of a celiac, daughter of a celiac, sister of 2 celiacs and a celiac! We did have a blood test done on our daughter at 2 years 4 months. She was "one point from a celiac". Oh really, she went on the diet and is a completely different child. She looks so healthy, grew 2 inches in 6 months and no more "mommy, my tummy hurts". I trusted my mommy insticts and she is a much healthier little girl because of it.



I was diagnosed 4 years ago after my dad got very ill. After many family practitioners he finally saw a GI and oh, big shock they immediately knew he had celiac sprue disease. Both my brothers and I tested positive - so we are one big happy celiac family.

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Roxane - posted on 01/20/2009

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we asked in the hospital the day our daughter was born. They said to just watch also. Actually the ped we saw said it wasn't hereditary so it was no big deal. So then we talked to the nurses. We talked with our ped and decided to do it around 3 or 4 because Eva was not a good eater. She was not a good pooper either. Finally we had enough and had her tested at 2 years and a few months. We did not do the gentic testing - it was not covered by our insurance- we just did the blood test. Had I not had it we would have never known what to watch for. Eva was always on the really low end of the growth charts - only hit 25% once in height - usually under 10%.



I would just watch him, unless you can do the genetic testing. Feel free to ask me anything!



and your little guy is so adorable.

Abbie - posted on 01/19/2009

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I was diagnosed 2 years ago and am not completely sure how to go about testing for my son. I just had my son (3 weeks ago!) and am wondering how early I should/can test him? One doctor told me to wait until I start seeing signs of it, but 2 people in my family didn't have obvious symptoms or any at all and I did not have the "classic" signs. I just thought you might have some input or thoughts on the subject. Thanks!

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