Questions to ask at dr's

Heather - posted on 01/27/2010 ( 1 mom has responded )




Does anyone have questions that I should ask at my daughter's dr appointment? My daughter is 3 with a gross motor delay. We do not have a daignosis and her muscles have low tone and are slow to build. We are wondering if the LMT is due to celiac. Her grandfather is diagnosed and her father is now showing symptoms. We are going to the childrens developmental clinic and just wanted any advice on questions or test I should ask about.


Stephanie - posted on 01/27/2010




I assume you are seeing a pediatric gastroenterologist. I just saw one for my daughter last week. He told me that children three and older are at the best age to test for celiac, because studies have shown that tests performed after the age of three prove to be more accurate. That's good news for you.

I'm sure the doc will want a lengthy history of any other symptoms your daughter could be having, so be prepared for that.

If you are not seeing the GI specialist, then you should ask specific questions about Celiac and what sort of tests can be run to get a diagnosis. There are blood tests, which can result in false negatives. The only true "gold standard" test is to have an upper GI done to take some biopsies of the small intestine. Chances are the doctor would want to start with blood tests though. Just don't be surprised if they come back negative. If they do, you should push for further testing if you truly think that is the cause. There are also genetic tests that can be done to see if a person CAN have celiac, but it doesn't tell you if you have it, it only tells you if you have the genetic make up to have it or not have it. So, this can be done to possibly rule it out, but not diagnose.

Well...that's all I have. I would encourage you to seek out a specialist in Celiac if you don't get the answers at the developmental clinic. A lot of doctors, believe it or not, are very unfamiliar with celiac disease. I have found that even some who specialize in it don't always know everything.

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