
Tammy - posted on 01/23/2009 ( 8 moms have responded )
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My 2 year old daughter has had mucous/bloody diarrhea since about 9 months of age (when she weaned herself from breast feeding) that her GI dr. has tied to a sugar intolerance (sucrose/fructose-both table and fruit sugars). He says that this is very common in celiac disease. She had the biopsy of the small bowel done in July, and he stated it was neg. for celiac. The blood work that was done did indicate celiac, including an extremely low IgA level (8). Nobody in my family (or my husbands) has ever been tested for/shown signs of celiac disease, but my middle daughter has an immune difficiency (low IgG and IgA). Given this information, the GI dr. says the feels my daughter must have just a sugar intolerance with immune difficiency. But she has frequent (constant) mucous/ diarrhea stools, bloated belly, gas, acid reflux, and won't eat most of the time. I am very confused because I am reading that the biopsy can sometimes be wrong. Should we pursue the celiac angle? Is there a more diffinitive test than the biopsy? Does anyone else suffer from sugar intolerance with celiac? Thanks, we would really appreciate any ideas anyone had. --Tammy
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Wendy - posted on 05/18/2009
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Sounds like my daughter's problems. She has seen several Gi specialists including a guy touted to be the best in his field, who specializes in sugar disorders in children. My daughter was diagnosed with Celiac and a disaccharide deficiency. But, then a second test has said that she is negative. She still gets vomitting and diarrhea from sucrose and fructose, mostly from too much fructose. So I avoid fructose, but be wise that sucrose breaks down into fructose into the intestine so that it could always be the problem. She does well as long as her diet is restricted and I aviod more tests and inconclusive results from doctors who can't seem to answer my questions. I wish you the best in your search for answers
Tammy - posted on 05/15/2009
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Hi Tammy I totally agree with Ranee a Naturopathic specialist is who diagnosed my son at the age of 3, he is now 5 and still releasing the mucus from the gluten build-up in his small intestines which shows up as a loose cough usually in the morning so wew do a gentle colon detox every now and then, it helps alot! Tammy from Florida