Shoulder Dystocia

Alice - posted on 02/09/2009 ( 23 moms have responded )

22

4

1

Hiya - Any babies out there with Shoulder Dystocia??

MOST HELPFUL POSTS

Lorenis - posted on 01/13/2014

5

0

0

My daughter was born with erb's palsy. She is now three months n recently started to move her arm upward. Her wrist she keeps it bend inward lightly moves her fingers. My biggest concern is how will her arm work n look if surgery is needed. If any1 has any answers on this matter I will gladly appreciate some info. Thank you

Yvonne - posted on 07/16/2013

1

0

0

My granddaughter has shoulder dystocia on her right shoulder she will soon be 5 weeks old, she can only move her hand amd fingers but my daughter in law takes her to OT and PT to keep muscles and joints moving normally, i am a grandmother that is just so hurt that this happens to our grand babies but we must just stay strong and pray that things will get better.

User - posted on 06/02/2013

1

0

0

Wow so good to see you Moms connecting. My daughter is 21 she was born with shoulder dystocia and no one even knew what was wrong. They told me she had a broken collars bone then sent her in my room with a physical therapist showing me exercises. I had to take her from KY to Ohio to an idea what was wrong. She now has about 70% use in her right ARM. But all of her childhood she suffered neck and back pain. I took her from Dr to Dr and most told me the shoulder distocia had nothing to do with the pain She now suffered severe pain I'm neck and spine. They did an NEO on her and she has the spine of a 70 yr old at 21. Please keep demanding answers. You guys make sure you get the help you need. Go Moms........het answers.

Lisa - posted on 01/17/2011

12

13

3

The nerve damage in his right arm is bad enough that it was totally limp for the first two weeks. He can move his fingers weakly. He is 4 weeks old now and he can do a pushing motion with his arm and his fingers are moving better with a stronger grip. Still no upward movement. He has the typical "waiters tip" of Erb's Palsy. He has PT once a week, but I do his exercises every day. I will look for you on facebook right now. Thanks.

23 Comments

View replies by

Victoria - posted on 01/05/2016

1

0

0

Hi, my daughter was born with an erbs palsy, she is now 10 weeks old, she had PT and we also do this at home too! She is now moving her arm upwards but using her shoulder to do this. . She has full finger movement but still turns her wrist outwards. . The lifting if the arm has only happened in the last 2 weeks, we are meeting a surgeon next week to discuss possible surgery, I was just wondering if anyone who has had they surgery could share some info or anyone who has a child with erbs palsy share how there baby progressed without surgery. Thankyou x

Audrey - posted on 10/14/2013

1

0

0

I have a now 3 year old daughter who had shoulder dystocia at birth v mild webs palsy. She had difficulty turning her neck in one direction which resolved with physio. She often complains with a sharp pain on that side of her neck like a dart every now and again since she was 1 and muscle v tight on that side. Would this b a lasting effect or has anyone else experienced it?

Importantpeace - posted on 06/25/2013

1

0

0

My daughter was born with it also! She is now 5months old and been to PT weekly for the last few months! We are going to to have the surgery done in a few weeks! Very Scarry for a new mommy but it important for her future to try and get her arm back! :( the doctors at Dornbecker encouraged the surgery as well as the surgeon we met with yesterday! Hoping for a great outcome! Blessed for this group!!! ♥ I will share more as I find out!

Hendy - posted on 01/24/2012

5

0

1

hey all - I've also had shoulder dystocia and had 2 babies with erb's palsy. Emma's group below is just fantastic and it has helped me so much. If you're looking for info on erb's palsy, I've posted a lot of resources on my page - www.facebook.com/erbspalsy.

Best to you all!

Kathy - posted on 10/19/2011

25

12

0

Emma I am so sorry for what you and your son had to go through! I am so glad he is doing well and continuing to improve. I had a similar experience with the birth of my second son. Coincidently my first boy had a shoulder dystorcia too though it recovered completely on its own in one week! My second however was a completely different story! I went into labor with him almost 2 weeks early and after about 2 and a half hours of pushing and 4 doctors hands trying to pry him from me he finally came out! They had to break his right arm to pry him out and he was lifeless! He too was not breathing and had no heart beat. Luckily the hospital I gave birth in has the best NICU in my state and my husband works in it so they took excellent care of him! They got his heart started with epinephrin and intubated him. He went up to the NICU and about an hour later he was breathing on his own. He had to stay in the NICU for a week but did great! Luckily we have seen no residual effect from the lack of oxygen, the arm they broke healed perfectly and his is continuing to improve with the erbs in his other arm. He gets PT once a week and about 6 months ago was finally able to reach his hand to his head! We are also lucky to live only an hour drive away from one of the top specialists on erbs whom we see every 3 months. He has not needed any surgeries as of yet just constant manipulation of his arm and we do restraint therapy so he can only use that arm. He just turned 2 last month and continues to improve!

Emma - posted on 10/14/2011

70

36

14

Here is a support group that I've set up recently!
https://www.facebook.com/groups/22374914...


My son has brain damage as a result of Shoulder Dystocia and will probably suffer long term problems due to his traumatic birth. I'm always keen to hear others experiences, the above group is a closed groups so all posts can only be seen by those who are members.

Lisa - posted on 03/06/2011

12

13

3

Oh wow Emma! How scary! Logan was not breathing and was blue and lifeless when he was born. Although his heart rate remained strong. He was without oxygen for longer than he should have been but it wasn't as severe as your son's. It's good his left arm resolved itself without surgery. I still have hope that Logan's will, but he is 11 weeks old and has very little movement although he's had PT since he was in the NICU at the hospital. Have you ever considered a lawsuit?

Emma - posted on 03/06/2011

70

36

14

HIE is short for Hypoxic-Ischemic Encephalopathy. It refers to lack of oxygen and blood flow to the brain. He had no heart beat at birth and for a least 5 mins afterwards, all his organs shut down and it took 3 days for his kidneys to function. We have to wait to to see if he has any long term damage as you can't know until he is older.

Lisa - posted on 03/04/2011

12

13

3

Oh Emma, I'm sorry your son and you have had to go through this! It just does not seem right that somehow they can be perfect and whole inside our bellies and their birth injure them. What is HIE? I haven't heard of this. I don't think my son's Erb's Palsy will resolve on it's own. I believe he will have to have surgery.He is going to the neurologist soon to find out more about it. He has PT once a week and we are seeing some improvement which is encouraging. Good luck with your son. It's a difficult road and these kids are ultimately the ones who pay for the rest of their lives with disabilities that didn't have to happen. It's just sad. My son has other problems besides the Erb's Palsy but I already explained it above. It's called Phrenic Nerve damage and it affects the function of his right lung and could be life threatening if he gets a lung infection. He is only 11 weeks old now so he's a little young to see if anything else is affected. I hope not. He seems fine besides the obvious disability.

Emma - posted on 03/03/2011

70

36

14

Hi my son suffered severe shoulder dystocia he will be 2 in may. He was suffered HIE and Erb's palsy as a result. When he was born he had no use of his left arm or neck (it was stuck facing right). With physio he has just gained full use of his left arm and neck. He has other problems now..,low muscle tone, lax ligaments, mobile joints and poor spacial awareness and is extremely hyperactive. He has seen a PT since he was 7 days old and has recently started hydro therapy. He wears orthotic boots to help stabilise him. Apart from his problems he is doing really well. I have to say I don't think I will ever come to terms with what happen the day he was born, I have never recovered fully. I don't know how other mums have dealt with the trauma? Does anyone one else's child have other problems apart from erb's palsy as a result of shoulder dystocia?

Alice - posted on 01/16/2011

22

4

1

Hey Lisa - That is what my daughter had is Erb's Palsy - How extensive is the nerve damage in her right arm?? If you want email me or add me to facebook that way we can talk easier :)

Lisa - posted on 01/16/2011

12

13

3

Hi Alice,
My son is only 4 weeks old. He had shoulder dystocia during his birth which resulted in Erb's Palsy in his right arm and Phrenic Nerve damage in his right lung. It caused the diaphragm in the right lung to become paralyzed as well as his arm. This resulted in a 2 week stay in the NICU. But thankfully his lung is doing better. It's not 100% but definitely better.I would be most interested in hearing the details of what you've went through. Hopefully my son wont need surgery, But we wont know for a while the extent of his injury. He has regained some movement in his arm but not a lot.

Alice - posted on 03/05/2010

22

4

1

Hi Angela,

If you need to email me you are more than welcome to as my daughter has Erbs Palsy and she has had 2 surgerys so far, nerve replacement and the tendan reprogramming
I can answer any questions you have the best I can :)
My daughter is now 4 years old and is doing well

Angela - posted on 03/05/2010

6

22

0

My daughter has shoulder dystocia and erbs palsy. We are enrolled in EI and see a OT every week in our home, a PT once a month, and an OT with the hospital once a month. We also drove to Atlanta GA to get her seen in the BPI clinic there. She is scheduled for her first surgery March 18th - a shoulder tilt and tendon transfer and we are pretty nervous.

Kathy - posted on 12/23/2009

25

12

0

my 2 year old was born with the shoulder dystorcia but recovered fully in a week! I just had another boy who is now 3 months and he had a much worse case along with the other arm being broken in order to get him out. He is recovering nicely and gaining some good movement in his arm! So far the specialist is saying 90% change he wont need surgery if he continues to gain movement like he has!

Alice - posted on 09/30/2009

22

4

1

Sorry just remembered I had posted up here
Mydaughter is nearly 4 and has had 2 major surgeries to help repair the nerves - the surgery this year was a success and she has much much more movement with it

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms