2 year old Son has Hydronephrosis. Recently has patted his side telling me hurt. Should I be concerned?

Danielle - posted on 07/10/2011 ( 2 moms have responded )

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My son is almost 2, he was born with hydronephrosis is his left kidney, Dr's thought he would grow out of it, but it has remained the same. Recently he has woke up crying at night patting his side saying hurt. He vomited tonight and last week was running low grade fever (could be coming from teething) Has anyone else been through something like this?

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Lovely - posted on 11/13/2012

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Yes, my toddler has had hydronephrosis since he was 4 months old (after starting baby cereal early) He was also born with a urethral birth defect that we noticed a couple months after he was born called mild glandular hypospadia and penile torsion. It is really hard to even notice and doctor's said I don't even need to tell him because it is minor. However, his kidney started at grade III and then grade 2 and then it was both kidneys and now just the right one. He pats his right kidney area sometimes and says "oooo" but no serious crying that I know of. I know your fear because my fear since he has a birth defect in his urethra that he also has one in his right kidney that blocks urine and causes it to build up in the kidney. I am hoping that he doesn't have any damage and he will out grow it. The doctor's seem to think that he will outgrow it and they don't feel concerned about it. The urologist even remarked last sonogram visit that next visit in 6 months might be the last visit. I am going to ask my pediatric MD to refer us to a nephrologist. He just had a really high fever and I am always concerned about his body. I tried the "all " organic ways but now realize that it is the same as regular healthy food. We are hoping it gets better with time.

Samantha - posted on 08/02/2011

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My daughter went through the same thing! She was diagnosed in utero at 18 weeks with hydronephrosis of the right kidney. She had 5 lasic scans in the first year, and every Dr. I spoke with said it wasn't causing any pain, but I'm not so sure it wasn't. Her urologist thought she may grow out of it, but referred us to anotger specialist at 11 months, when her right kidney function decreased to 15% ( her left kidney was fine). The specialist found a blockage from her ureter into the kidney and scheduled a surgery to fix the blockage, but prepared us for a good possibility of kidney removal. It turns out they were able to successfully fix the blockage and put in a stint robotically. We were out of the hospital the next day and she was back to herself within 2 days of the surgery. It was a terrifying experience, but ended well. I can only imagine what you must be going through...I was thankful my child's surgery and testing was at such a young age. My suggestion would be to call your urologist...the tests are horrible, but if he's complaining of pain, he could need to be checked out again. I hope he gets better:)

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