Auditory Processing Disorder

[deleted account] ( 37 moms have responded )

I have an almost 11 yr old who was diagnosed with Auditory Processing Disorder a few years ago. Was wondering if anyone else has a child with the same disorder? I have questions!! Thanks..

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√v^√v^√♥ - posted on 07/01/2011

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I have APD if anyone wants to ask me about it. I was diagnosed when I was 13 and have struggled with it my entire life. It's a true struggle, a true disability. I even had problems all the way through college and even on a day to day basis I feel it hamper my life. Although, with a lot of attention to learning about myself and APD I've come very very far in overcoming it. It still affects me, but I realize how it does now and know how to cope with it. In fact, I feel I'm better because of this. Because of how I dealt with it, it taught me to pay more attention and try harder. If anyone wants to know about APD in a grown up and everything I dealt with growing up, in school, in life, etc, please feel free to write :) not many people know about it

Lisa - posted on 02/07/2009

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My son, also named Dylan, was not diagnosed with APD until he was almost 13 he is now 17 and so far behind it is hard to see the light at the end. We moved from CA to OR 5 years ago and he was just finishing up 5th grade. I had repeatedly asked for testing as my older son has the same diagnosis but CA dropped the ball. We moved to OR and because he had been retained in K and 2nd grade they said he was too old for 6th grade and bumped him to 7th...we asked for testing once again and finally 6 months later the diagnosis was made. Mind you prior to this testing because he was struggling academically he developed "coping skills" and became the class clown/disturbance. :(  He would divert any negativity directed at his failure to comprehend and make the kids laugh which I am sure frustrated the teachers immensely as this disrupted the class...they then labled him as a trouble maker and treated him as such...many years of rebellion and alot of heartache...we never had problems with him at home couldn't understand why they had such "problems" at school. If they had taken the time to test him and finally diagnose him alot earlier...many problems would have been avoided. I have prayed alot and continue to do so. As a 17 year old he should be in his Junior year and looking forward to graduating next year but because they didn't test him he is only a freshman...who has the opportunity to stay at school til he is 22 or 24 because of this disability but doesn't look like he will finish. Breaks my heart because he is such a loving and wonderfully smart young man. I don't know how else I can help you except to say stay on top of his education, teachers and the school. Don't let them put him in a box and throw away the key like they did with my son. I will pray for you and your son. God Bless

Beatrice - posted on 03/06/2014

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I have a soon to be six year old who was recently diagnosed. She is seeing a speech pathologist once a week, I am working with her using a book called no glamour and preteaching her vocabulary. It is so hard to see your child struggle. I wonder if I should hold her back. Had anyone held their child back?

Tara - posted on 04/11/2012

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My 9 year old son has recently been diagnosed with CAPD. We found out that it takes 1 1/2 longer for the information, going through his left ear, to the right side of the brain. He also, has mixed receptive and expressive disorder, and problems with speech. He has recently, started seeing a Speech Pathologist, twice a week. An Audiologist, one a month, & I work with him everyday, with his reading comprehension, speech, & he listens & repeats the disks, that the Audiologist says will retrain his brain to listen differently. I have been very over-whelmed by all of this. I wish I could have some encouragement, as to the future! All I hear is time will tell, & I know that it will! Any insight would help?

[deleted account]

My son is 8 years old and was diagnosed last year with APD. He finds school realy difficult and comes home exhusted!! I am pushing at the moment to get him some extra help at school. He also has speech, reading and spelling difficulties. He has been in and out of speech thearpy since he was three and still has 'immature' speech. It is really helpful reading about other peoples experiances with APD, and knowing we are not alone with this, most people have never heard of APD and can't understand how he finds every day such a struggle!

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Jessics - posted on 04/16/2017

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Hey moms, i have a copy of The Listening Program set complete with 8 discs and journal with reading material. T.L.P. is auditory training for children with auditory stimulation issues like add/adhd. This program is beneficial to children with

Difficulty following directions
Difficulty processing or retaining auditory or sensory input
Articulation problems
Language problems
History of ear infections
Sensitivity to sound
Poor attention
Vestibular problems
Needing constant stimulation

If your child meets any of the criteria and youre interested in trying a non-traditional approach then google it or message for info

I found a set online for 525 dollars and im really just trying to find a mom or two who needs it and maybe cant afford that much

I have the physical copy and I also have a digital copy for sale both a lot easier to afford. Let me know if youre interested you can also email me at jpkelle2@gmail.com

God's - posted on 11/04/2014

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Check out Teri Bellis- same thing happened to him. Author of "When your brain can't hear".

Blessings +++

Jane - posted on 07/01/2014

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Hi, My 13 year old boy is exactly the same. I have just bought a listening device and microphone for the teacher, he has attended Lindamoodbell which has been a lifesaver.

Jane - posted on 07/01/2014

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Hi, She is young so as long as you do extra work with her she will be fine.
Try Fast forward, Lindamoodbell, vocabulary enrichment intervention programme, get her a listening device and microphone for the teacher.

Stacey Ford - posted on 04/19/2014

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My 12 year old daughter has CAPD. She is very conscientious, but social things are a very big challenge right now.. She's been diagnosed for a year and a half. She's very quiet at school. She never initiates asking a friend over. I have to tell her to do it and then she's glad she did. The quick give and take in conversation is tough and BOYohboy do GIRLS TALK FAST AND OVER EACH OTHER!!

She's in the 6th grade. It really becomes obvious that socializing takes on a whole new importance!

Because she's a little "different" Im making an extra effort to have her wear the 'right' brands and styles when if she was a little more social on her own that wouldn't matter as much... Does that make any sense to anybody???

Yvonne - posted on 04/15/2014

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My now 11 year old son was diagnosed with CAPD four years ago. He was fortunate enough to get into a program called "Fast ForWord Auditory Training Program" created by the Scientific Learning Corporation. It's an adaptive, supervised intensive therapy program. Published research has shown that in only six weeks of this intensive therapy offers gains of 1 1/2 years in linguistic skills. Definitely worth the expense!

Melissa - posted on 03/26/2014

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My daughter was diagnosed 3 years ago. At first I thought holding her back would be something we should do. Then I realized that she was working so hard already that it might make her loose her confidence. Just a thought .

Beatrice - posted on 03/06/2014

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My child is also on the listening program. We just started so I don't see any changes yet. Some of you talked about being in freakout mode. .. this is me! And so few people know about the condition that I really have to explain it and push for support.

Wendy - posted on 11/10/2013

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My daughter has APD and is dyslexic. I've been trying to figure out if some of her seemingly disrespectful comments to adults could be partly influenced by an APD or if we are looking at other issues. Some of her comments seem like talking back but she seems to truly not be able to understand how they might be disrespectful. I'd love to hear any thoughts.

Cedar - posted on 09/26/2013

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HI,
My Son is 3 years old. We adopted him from birth as my husbands sister was mentally unable to keep him. He was exposed to nicitone and drugs during pregnancy and had universal delays as he matured (gross motor, fine motor, behavorial, speech...). He had a lot of professionals working with him during the first 3 years of his life but when he turned 3 it was determined that he wasn't significantly delayed and all services were dropped. I noticed when he was little that he would cover his ears in the car and store sometimes, he had always spoken really loud, he can be stressful in his loud awkard repetition of language, he is very social but often says inapproiate things to all he encounters. While I am so happy that he is not significantly delayed I am still concerned. He is a wonderful and very challenging child. I figure that the universal delays must have been caused by a processing problem. As I read about APD it fits perfectly. I am wondering what I can do to help him. He doesn't fit into the bracket for services as his delays are small yet I feel that if we are not helping him until he begins school and has learning struggles, we are letting 2-3 years of important time go untreated. I want to know if there is a way to get him services he needs, how to set up my house and routines to helps him, activities I can do with him to help him with auditory processing, ways to help him in a store (he screams, throws things out of my cart and off shelves, and repeats loudly to all people we pass whatever conversation he is stuck on...it is a challenge). Does anyone have information for me??

Jennifer - posted on 09/18/2013

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Chris wygergangs
Can I ask about the natropath and the diet you chose for your son.
Our APD child had a food allergy to peanuts dary soy wheat and garlic dx when he was about 7 . It would cause his cognitive self to shut down to a daze.
A couple years later we had it retested and he had outgrown it. So we introduced those foods back into his diet.
I do believe that this could be linked to his APD but the food allergy tests don't show any reason to believe thT we should change his diet
I curious what has helped your son to cause him to do so much better .
Thank u,
Jennifer

Jennifer - posted on 09/18/2013

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I have questions!!!
Soo many
Thank u for sharing;)
My son is going to be 15 this month, he just started HS and has struggled with what the audiologist considers a very strong case of APD and u r correct not many people know of it so it's hard to find people that understand what your child is going through. I only know by what I read my son is not able to explain it to me because he isn't aware that he has anything all he can see is that he has a learning disability and that's only because he's been told this :(
I guess what I want to know is when did u start to take responsibility for your learning ?
He's a boy and probably compared to girls ;) less interested in being responsible however between his aides, tutors, adjusted homework and education requirements and myself we still have to push to get decent grades.
He's on track to graduate with a modified diploma which I believe they just started for kids on ieps.
I pray for the day he takes matters into his own hands and recognizes what he needs to do to be successful. We all have hurdles and I will always be on his corner ready to fight for whatever he needs. Hes a brilliant young man with so much to be proud of and I hate seeing him struggle. I want him to be strong and proud. If u have any thoughts on this I would greatly appreciate it . I stress and worry often about what life has in store for him and if he will even have the tools to be successful in college .
ThAnk you ,
Jennifer

Debbie - posted on 02/12/2013

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I have a 15 year old daughter, who was diagnosed with CAPD when she was 13. She has an IEP for other health impaired because they (referring to the school system) had ADHD and LD issues in all subjects. NOW her biggest struggle is vocabulary. Any suggestions on how I can help her be successful in classes like History and English?

Renee - posted on 01/10/2012

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My now almost 13 yr old was diagnosed with Syntatic Comprehension Failure which seems to be a fancy name for Auditory Processing Disorder. It seems to be a disorder that accompanies a few other problems/disabilities. My son also shows signs of aspergers and adhd. Still in the process of getting dr's to diagnose what is actually wrong as he is a high functioning child.

Jane - posted on 12/31/2011

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Hey, I am waiting on an appointment coming through from Great Ormond St about my son being tested for this. I have tried to find out as much about it as I can. He attends Yorkhill at the moment (stay in Glasgow)

Enid - posted on 07/01/2011

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Hi Jill my son is 3 and he was recently diagnosed with APD, the only difference is that they call it here language processing disorder, wich I have learn is the same. I feel like you feel, in freak-out mode, but I still trust that the Lord will help us. Looking in the internet for more info about it, has help me a lot, now we have less fight with him, and less frustration, cause I know that what he does is not bad, is only part of his condition. Now we try to work it out with him, and we try to be more patience with him also. Is not easy but I know it will get better. He also has ADHD and Dyspraxia. But we still positive, and we will be keeping our hopes up.

User - posted on 06/30/2011

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My son was just diagnosed with APD...he'll be 3 in September. Anyone else have a child diagnosed young? I just want to look into a crystal ball and see his future. Right now, I am still in freak-out mode. So, this thread is nice to find.

Carol - posted on 02/10/2009

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Heather, there is one thing I have learned with this journey with APD is you have to be pushy. You are the only one who has your son's best interest at heart. The school ans staff are looking at their bottom line, we need to look out for our child's future.

[deleted account]

I am definitely the mom that PUSHES her school to do what is right for Dylan and not what is right for the SCHOOL! I am the "bossy" mom... I can see it in the teachers faces about stuff... but I don't care because I am the one who knows him best. =)
Thanks for all the posts!! WOW.. =)

Sharyn - posted on 02/07/2009

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Hello, my 5 year old had speech delay and has been diagnosed with capd and dyslexia, we have him on "The Listening Program" and the changes we are seeing are amazing, he is starting to listen and follow instructions more and seems so much more calmer.



His yet to learn how to read and write but i am also getting him help from the school as i made such a fuss about it,  i demanded they help my boy, so im sure with time i will be able to give you updaters on his progress

Christina - posted on 02/03/2009

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Hi i have a daughter ... she is 8 and in the 2nd grade .. she is struggling in school for the past 2 years something terribly ... she does great in small groups .... but in large ones she tanks.. .her grade level is 1st grade 5th month in english and math .. she just had a CAP test done ... awaiting the results to shed some light on it for us ... any info or suggestions would greatly appreciated im at my witts end .. i dont know how to help her .. and she tries so hard and is such a good worker in school.. im afraid she is going to get so frustrated and shut down ..

Jan - posted on 02/03/2009

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Hello Heather, My 11 year old has been diagnosed with Auditory Processing Disorder.  I also have it and so does my father. 

Carol - posted on 01/30/2009

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I have a son with APD. When he was finally dx'ed it's like someone finally understood what he was going through. He is almost 14 and still struggles with school. He works hard by staying after school and doing extra work at home. We have IEPs for him too. He learns better in small groups, but tests out of that extra help.

[deleted account]

Forgot to mention, my son is 11 yrs old now. He's the "typical" kid now.. just can't read as well as others his age but he isn't that far behind... I was the one that pushed Auditory Processing Disorder to the Docs.. thank God for the Internet and me being that type of mom to try to figure out what was going on with him!! =) He's tested yearly to see what level he is reading, understanding... and Cognitively he is very very smart. He had a very high IQ score on one of the tests.. he just can't read it to you and completely understand what he read but if you read it to him he can tell you everything about the story!! So yeah... we have IEP's each year and I help write them.. I had a physically disabled child who passed away almost 6 yrs ago and I wrote his IEP's too because our school district had NO CLUE as to what to do for him either. I think I need to get into the field that helps parents learn what their rights are in their IEP's.. schools don't tell you EVERYTHING you need to know.. anyway.. I am rambling now!!

[deleted account]

Thanks for all the posts.. sorry I didn't respond earlier!! Dylan started off with a speech delay. He would speak in "Dylanese" as we called it.. no one could understand him. So he started Speech Therapy... he speaks clearly now. His issue is with reading.... he has a hard time with that. He can build anything you ask him to but reading and spelling are a challenge. He seems like a typical kid when you speak to him.. no problems there anymore. lol
Thanks again for your posts...

Diana - posted on 01/22/2009

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I have a child with Auditory processing as well! He is 7 and we too have yet figured out how to get it! Let me know what works for you guys!



Logan also has an extensive list of other disabilities too!

Valencia - posted on 01/13/2009

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My son has been diagnosed as well about 18 months ago. He also has visual processing disorder as well, but we have had therapy for that and he is doing very well. Have you looked into whether it is a part of a larger diagnosis? Turns out my son has Dyspraxia and knowing that has made such a huge ray of light shine. I have learned ways to deal with all the issues as a whole and help him too.

Chris - posted on 01/11/2009

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I have a 10 y/o son with CAP disorder. We have taken some steps with him (naturopath, diet changes, etc) and have seen some amazing changes in him over the last 3 years. His last report card was awesome, got mostly Bs and an A, he is actually reading for pleasure (which he wasn't doing before). He still struggles with printing, spelling...always will.



It is definitely a mystery disorder. It will affect different children in different ways. There is another test that goes along with the CAP testing (P300 responses). Our son is to be tested yearly. His results haven't changed, but as I mentioned, he is doing much, much better.



CAP disorder is genetic. As the audiologist was explaining the disorder my husband was nodding his head. He went through it all in school. As children get older, it will manifest in different ways...older kids will have a hard time with time management, will have a hard time staying on task (getting projects finished, etc.). Really very interesting.



But, completely manageable with the right tools!

Nicole - posted on 01/11/2009

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my daughter, 12 has it along with a few other things.  Im not sure I can help but I can try.  It is really a mystery to me also.

Shauna - posted on 01/08/2009

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Hi Heather, I just posted a question about the same thing :- ) My son is 8 years old and in the 3rd grade. He's just recently been diagnosed but we've been dealing with this since he was about 2 or 3. What kind of questions do you have? Maybe we can help eachother. Talk to ya soon.

Shauna

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