Sarah - posted on 01/09/2013 ( 10 moms have responded )
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As much as I love my daughter and know that her end of this disease is much worse then mine, I can't help but feel like I want to scream and hide! One meal without BG testing, one meal without counting carbs, one day without trying to flush ketones, one day to just be "a normal mom" again.
Something as small as grocery shopping can be down right depressing. Making a list of healthy meal and snacks full of protein, low on carbs. Reading EVERY set of nutritional facts. Watching parents let their kids choose whichever cereal they want off the shelf without worrying about what that particular cereal might do to their blood sugar. Are these feelings normal?
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Kelly - posted on 03/27/2013
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I am certainly with you. My son will be 17 this summer and I don't think we have had one good A1C. I cry everytime we go to his diabetic doctor. Teens are tough. Tristan was diagnosed at the age of 10. His godfather took him to see a young guy in his 20's on a kidney dialysis machine 4 x's per week and after that my son asked if we could go get ice cream. Luckily we have had no hospital incidents (knock on wood) but trying to tell him what he is doing to his body and his future is pointless. Everyone has told him but they think they are invincible during these years. I have a 7 year old son and 3 year old daughter and we do not have "junk" food in the house because it is the first thing my son will go for so it's hard with the other 2 that don't have the disease. He even stopped giving his insulin because "he didn't feel like it". They reach a point where they don't care and they are our children and it hurts us as parents. I have told him a million times I would take the disease from him if I could but he has to grow up and take better care of himself. I think everyone who has a child with Type 1 goes through this. You are definitely not alone!!
Jaylee - posted on 03/21/2013
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Hi everyone
I certainly do wish that sometimes, for him and for me. My son is almost 16 and diagnosed two years ago. I can handle the counting of food etc but the constant battle with him to test and eat on time and not sneak food can be so draining at time. His attitude to diabetes lately is i don't care which really worries me. Its not an easy disease that affects every part of your childs life and most people on the outside don't understand it, so im with your on that frustration too.
We have a AC1 test today and i know it will be shocker. Knowing your not alone has helped me alot too. I have met one friend who is also a type 1 mum and would love to meet some people online too talk to as well :-)