Depakote and eye rolling

Patty - posted on 06/01/2011 ( 9 moms have responded )

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Hi. My son was put on Depakote to help control his seizures since the Keppra wasnt working. He still takes his Keppra too. He used to have grand mal seizures but now he has these wierd "eye rolling" episodes with a jerk and a gaggin noise. The doctors have said they are petit mal seizures. They are happening sometimes 20 - 50 times in an hour. I am wondering if the Depakote has something to do with this. The neuro says no, that his seizures just arent being controlled by anything right now and they also have him on Klonopin which isnt working very well either...he is still having about 10 - 15 a day (better than in an hour but it still is very worrisome). I am trying to trust the doctors and I am doing everything they say but I am frustrated because he is still having episodes and they arent what the neuro says is controlled. I was wondering if anyone else has had this problem? ANy advice? I just need a little insight to help understand this a bit better so anything is appreciated because I am very anxious for him always. Thanks in advance.

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Beth - posted on 11/13/2012

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My son has eye rolling with the depakote after being on it for 1year. Pretty severe last night..will be calling the doctor. My older son had eye rolling right away when he tried the medicine. Also my cousin. All being treated for bipolar.

Patty - posted on 07/09/2011

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Thank you so much for the information ANgela. I have been looking everywhere for answers but none found. THe Depakote controls my sons grand mal episodes too but not the eye rolling petit mal ones. I will definately mention what you have said to my neurologist when I go in 2 weeks. Thanks for the help. I really appreciate it.

Angela - posted on 07/05/2011

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Hi Patty,
My daughter has petit mal seizures also. Her episodes are similar to what you describe in that she flutters her eyes (eyes are rolling). This started when she was about 7 and she is now 15. We have been to so many doctors but it has finally been diagnosed as a rare form of epilepsy called Eyelid myoclonia. My daugther has been on every medicine under the sun -- Depokote being one of them. Her medication controls her from having grand mal seizures but none of the medications seem to control the petit mal and so the eye fluttering continues. She is currently on Keppra and Zarontin. We took her to several doctors but it wasn't until we went to NYU Epilepsy Center that they told us exactly what she had. We have ultimately switched to a doctor in Weill Cornell who has actually had a patient with this type of epilepsy and he finally told us that she mostly likely will never stop with her eyes fluttering so that could very well be something that will be with your son. I would go to another doctor and mention what my daughter has. It may give you some answers that you are looking for.

Patty - posted on 06/09/2011

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Thanks for the prayers Tracey...I appreciate it! I will pray that they get the dose right for your daughter as well. It is so frustrating to try and figure it all out but I am thankful we have a place for advice and support. Have a great day!

Tracey - posted on 06/08/2011

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My daughter was seizure free for almost 2 years, then started having them only a couple times a year to having them every few months to having them several times a month. She is on Trileptal and Lamictal now. She was on Depakote but her hair started falling out FAST so the doctor took her off and put her on her current meds. Now we are trying to get the dosage right. When she has a seizure, she has the generalized grand mal, then her eyes roll back and she sounds like she is snoring, then she relaxes. After 5 minutes or so, she is totally out of the seizure and aware of her surroundings. In the beginning, it was several hours before she would be aware of anything. I think his seizures may be unique to him. I will keep y'all in my prayers.

Patty - posted on 06/08/2011

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Thanks for sharing your story Brandi. I appreciate it. I am happy for you and your family being seizure free for 3 months. That is great!

Brandi - posted on 06/08/2011

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My son went from grand mal to these..the dr upped his tegratol and put him on depakote at night so far we are three months seizure free.

Patty - posted on 06/08/2011

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Thanks Jen. I was recently able to catch one on video tape so they are reviewing it to see if something else is going on.

Jen - posted on 06/08/2011

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You may want to get a second opinion from another neurologist. Not sure where you are located but there are lots of good ones at Childrens Hospitals through out the country. National Childrens in DC, Childrens Hospital of Philadelphia, Johns Hopkins, UCLA, Mass General etc.

I've found video taping when these events happen and emailing it to your neurologist is a good way to make sure they really understand what's going on.

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