Missi - posted on 02/03/2017 ( 1 mom has responded )




My 16 year daughter has been diagnosed with epilepsy in the last week. She had a seizure (tonic clonic- grand mal) a week ago on Monday and then another (same) on on Sunday a week later- her EEG came back abnormal today. They have placed her on Keppra now for 5 days. She just wants to live her normal life and wants her freedom. She wants to go to the Hockey game with friends, to Basketball game with friends, etc.... She is an athlete and just wants to get back to volleyball. I can not understand how much freedom I should be giving her! I am so scared about her going to these games right now. What would you do? The doctor said it was fine - Please help me understand my next steps - so scared!


Yolie - posted on 05/06/2017




I hope you are doing better since you posted your question. I know the feeling. In almost every case of a child with epilepsy we will see that the parent takes it harder than the child does. Which is good and bad. It is good because your daughter is lucky to have a loving mother that is concerned about her health and her safety. But it can be bad if you worry too much. I think sitting down with her and being on the same page on what is to be done in case she has a seizure when you are not around is a go.od idea. If you don't know her friends, it's time to meet them. If you already know them you can involve them in how they can help your daughter in case of an emergency. Make sure that she shows the necessary responsibility to know what to do, like always carrying her rescue medication with her. It's great that she wants to live her life as normal as possible. My son is barely 3 so if he is like your daughter when he is 16 I will feel relieved to know that I raised him right and that he is strong and courageous! Good luck to you and your daughter

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