TORCH Infections

Amy - posted on 10/25/2008 ( 3 moms have responded )

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Greetings! My daughter was born four weeks early and did great until we came home from the hospital. When we went in to see the pediatrition, she felt something was wrong and sent us to the children's hospital for a brain ultrasound (they can do one because their skull bones havent fused together yet, it was pretty amazing to watch). The ultrasound showed an area of extra blood vessels in her brain. The doctor gave us a long list of things that it could be. Anyway, after an EEG, an MRI, and many, many blood draws, they realized it is what is called a torch infection. This is where we actually get lucky. Because I had a doctor that trusted her gut and got my baby to the hospital, they were able to start her on medicine before she had her first seizure. The EEG showed activity, but they hadn't started full blast yet. It ends up that she was born with a TORCH infection, which is an anagram for a few different types of viruses that can be passed to your baby. I had one fever blister outbreak when I was pregnant, and it caused a seizure disorder. Luckily though, it should go away when she is about six months (I am preparing myslef and trying to be as informed as possible in case it doesn't go away). They said if I had had the STD type of herpes, it would have been much worse. We have been so lucky in so many ways. I am controlling it with phenolbarbitol that I crush up and put in her formula. Anyway, I guess I am on this site to see what other moms are doing to control/survive their child's seizure activity. We are lucky to have really great pediatric neurologists in our town.

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Rochelle - posted on 10/31/2008

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that is great that all the team of physicians seem to agree and that she is thriving. it does sound like all the information lines up with that diagnosis. i wish you the best and your cutie baby, enjoy those baby years because i was so wrapped up in the medical stuff i can hardly remember just enjoying her without thinking about the seizure stuff and what the future was going to hold for her, but she is doing well and is a true blessing.

Amy - posted on 10/29/2008

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that is interesting. did they do any blood tests? they said that since she showed that the antibodies passed accross the placenta, and all the other things they tested for came back ok, it was a TORCH infection that caused the abnormal activity in her brain. We have had the pediatritians at the practice we go to, the pediatritians at the hospital we were in, the neurologists, and the infectious disease doctors all conclude that this is what it is. That is strange that the doctor thought it was due to you having an upper respiratory infection while you were pregnant. That really doesn't make much sense and I think i would have been asking questions as well. Her diagnosis seems to fit in with all the research I have done. We will see. Right now she is thriving and hasn't had any seizures. Hopefully this continues. Good luck!

Rochelle - posted on 10/29/2008

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my daughter was diagnosed with this also at 7 weeks old, we felt the doctor was grasping at straws so therefore continued to seek out another doctor, and found an accurate diagnosis which was tuberous sclerosis. very scary no matter what but torch like many diseases is rare, just make sure you have researched all options.i also thought it was weird that the initial dr. thought all the seizure activity with the baby was due to me having an upper respiratory infection whole pregnant.

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