Welcome!

Pam - posted on 12/13/2009 ( 19 moms have responded )

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Hi, my name is Pam. I have a 5 year old daughter diagnosed with Autism. While parents of children with Autism share a lot in common, I think there are also some unique issues to raising a girl on the Autism spectrum. This is especially true as they get older. Please introduce yourself, share your story, information, or ask questions. I hope this will be a community of information and support. - Pam

19 Comments

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Karen - posted on 02/17/2011

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Thanks for the welcome. I am in California. She gets ABA daily (1.5 hours a day), I’m sorry if that is not clear. The programming is overseen by a Behaviorist who is a BCBA, we get 4 hours a month behavior consult from her. The programing and scheduling is run by someone who is called both an Autism Pre-K Content specialist and supervisor. She is not a BCBA, but she is very experienced. The daily therapy is done by therapists (they call them tutors) who are also not BCBAs, they do have experience, and like most fields, some are better than others.

I agree that there should be more easily accessible ABA services. They stop here after Pre-K at least through the school department. I hope that may change by the time my DD gets there.

Pam - posted on 02/17/2011

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Hi Karen,
Thanks for joining and for sharing a little about your daughter. I am so glad to see that your daughter is getting ABA weekly. That is not something that enough people have access to. Do you mind if I ask what state you are in and if it is provided by a BCBA or a BCaBA?

Please share any info you might have to offer others and ask questions if you have them. As I keep saying, the group is not real active but I hope it will grow. I typically respond as soon as I can when people post something.

Karen - posted on 02/17/2011

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Hi, I have an almost four year old daughter with autism. She was diagnosed just after her second birthday. She goes to preschool (SDC) and has ABA at home each weekday.
Great to find a group for girls with autism, I do think there are gender differences.

Pam - posted on 01/20/2011

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Hi Melissa and welcome! What do you know about the psychologist? We saw a child psychologist to help confirm diagnosis. However, some child psychologists are trained in Applied Behavior Analysis (ABA) and may provide you with recommendations for treatment. Is this person also a Board Certified Behavior Analyst (BCBA)? What will happen really depends on the psychologist's background and the purpose for the referral.

My daughter receives ABA in a program supervised by a Ph.D Psychologist who is also a BCBA. This is the treatment I stand by and it is backed by years research.

Good luck with everything!

Melissa - posted on 01/20/2011

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Hi Pam! I am new to this group! My daughter Sydney will be 3 in April and she was just diagnosed with Autism. She works through the school for speech and an early intervention teacher and we will be taking her to see an Occupational therapist and a child psychologist. Has anyone taken their child to a child psychologist? I was just wondering what to expect.

Pam - posted on 12/14/2010

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Welcome Adriana! Sorry it has taken me so long to get back to you. This group is generally not very active, but I do try to respond to anyone who posts. I hope that more people will post with questions and/or advice for others. Thanks for joining.

Adriana - posted on 12/09/2010

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Hi my name is Adriana i am the foster mother of a 15 year old girl, Melissa with autisim. I think this group is a great idea as everyone i know with children who have autisim have boys.

Yvonne - posted on 05/28/2010

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My daughter does the same thing when I take her to restaurants.She goes under the tables.I let her only if shes not annoying people around her.My daughters teacher put one of those beaded pillows were she sits.It works she sits with out getting out of her chair.

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Thanks for the welcome. I have been reading all I can about Autism. I have a new found outlet here and I'm very grateful. Glad I found this group hope it grows so I can find other moms like me.

Pam - posted on 05/24/2010

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Hi Tina and welcome! You are definitely not alone. If you have any questions or information for people, this is the place for it. Check out some of the links here too. I hope to post more as I find the time as well.

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Hi, my name is Tina. I have a 5 year old daughter just diagnosed with Autism. My son Zachery has Asperger's. He is 12 now and also just diagnosed in April. I was overwhelmed with joy and questions with being diagnosed. Man did this explain alot. It gave a name that made alot of sense. He has been diagnosed with ADHD, Bi-polar, OCD, ODD, conduct disorder, and a few others. We were told he was deaf at two.
This actually fit and now I understand the whole picture better.
Thanks to an AWESOME Special Ed Teacher. (Mr. Paul) Who gave us the information about Asperger Syndrome, and suggest we talk to our Pediatrician. We talk to her and got referred to the Child Study Center for testing. I now have more understanding and patience for things that they do that drives me crazy.
So what if she's under the table at a restaurant, she isn't running around like a wild child.
We are at the being of the process, it will be along one. But I'm ready for the challenge.
Glad to see that I'm not alone in this, and to see others with common issues and trials.

Pam - posted on 01/30/2010

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Jen W.
Check out the new conversation "communication methods" I've answered your question there. :)

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Hi Pam! That is a great idea. Unfortunately, Koi is still on an object schedule. She doesn't yet understand how to point to pictures to communicate her needs. She is getting there, though. I suspect she will be there in about a year? I am not sure if she would able to use an ipod right now, although I know other kids with autism are quite good at it! I will look into the PECS and mention it to her teacher. Thank you! So, your daughter is autistic AND has apraxia? How did you find this out?

Pam - posted on 01/29/2010

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Hi Jen, so glad you joined. My daughter has apraxia and doesn't talk much...although is talking more and more all the time. She started using the Picture Exchange Communication System (PECS) and now uses the Proloquo2go application on the ipod touch. It is basically PECS on an ipod.

Has anyone ever talked to you about teaching Koi to use PECS? It made a world of difference for Alex, took away the frustration when she was trying to communicate that she wanted something.

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Hi everyone! My name is Jen and I have a 3 1/2 year old daughter who was diagnosed with Autism at 30 months. I'm also a single mom, which means I NEVER get to sleep! lol. Anyhow, we live in NC right now- we moved here from CA in 2007. Koi is in part-time preschool and also receives other services, like TEACCH once a week (a program through UNC Chapel-Hill). She's considered "in the middle" in terms of being on the spectrum. She is not entirely verbal (like she talks, but only on her own terms). However, she's come a really long way! I'm so proud of her :-) Anyhow, I'm glad to meet all of you- and any suggestions or advice you could give me would be much appreciated! :-)

Kim - posted on 01/09/2010

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I have a 12 year old daughter who has autism. I'm not looking forward to her going into puberty but that will just be another notch in the belt. She is non-verbal but understands everything that is said.

Jenny - posted on 12/13/2009

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Very cool idea Pam... Hi my name is Jen I have a 4 year old daughter Diangnosed with Autism,

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