Submucus Cleft?

Jackie - posted on 10/09/2009 ( 1 mom has responded )

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Hello!



My son was born with a submucus cleft. He is slow at talking so he has been seeing a speech therapist since he was 2 (he is now 4 and a half). Just recently the speech therapist found looked in his mouth and found out he had a doubled uvula and a soft spot on the soft spot in the back top of his throat. Saw the nose ear and throat specialist last week and good news he doesnt need surgery? We are going to see the cleft palate surgern just so he can take a better look. Just wondering if anyone else went through this type of situation?

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Emily - posted on 10/18/2009

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Hi Jackie;

Our little guy (15 mos) has a suspected sub-mucosal cleft (he had a cleft lip too) and we've been told by our plastic surgeon that 85% of kids with sub-mucous clefts don't require surgery but that those whose speech is affected past the point of being helped by speech therapy are the ones who require the surgery. Therefore, we have to wait and see if he'll need the surgery or not. He has a bi-fid uvula as well (that's how they diagnosed the sub-mucous cleft initially). Hope that helps!

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