Moms of kids with craniosynostosis

Community for moms of kids who have (or have had) craniosynostosis.

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second surgery

my daughter diagnosed with coronal craniosynostosis she had her surgery 15 months ago this past 3 weeks i hav enotice that her forehead is getting a little flat again from the...

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Coronal Cranio

Hey everyone! My 5 month old daughter has Coronal Craniosynotosis. Her surgery is scheduled for April 10th here in Tampa, Fl. I am nervous, but know this is the fix. I am hoping...

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Just found out the news

Hello My mane is Enedina and i have 2 wonderful kids but today i found out that my 3 month old son has metopic synostosis. It was kind of hard to hear that there's something...

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unilateral coronal cranio

Hi ..I am sruj and my son is shaurya and almost 5 months now. I am glad i have seen this community and so many other stories with craniosynostosis..It gives me a lot of...

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Dr. Stelnicki

Does anyone have any experience with Dr. Stelnicki? He is my current pediatric plastic surgeon for my twin 5 month old baby girls. I just recently met with him for the first...

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FUNNY LUMP

My 2 and a half year olld son had metopic cranio surgery 6 months ago but has still got a funny lump on his forehead which feels like it's something thats holding his head...

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Coronal Craniosynostosis

My daughter Brooke is 9 months old and had her surgery last week at the University of Michigan. If your child is in need of this surgery, I would highly recommend the University...

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New diagnosis

We just found out my daughter Addison has craniosynostosis. She is 11 weeks old and if anyone has information about this they would share that would be great. She goes to...

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Recent Diagnosis

My son was recently diagnosed. I first mentioned his head shape to my pediatrician at 4 months. They diagnosed him with torticollis and said to just reposition him at night....

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Hello...I'm new!

Wow...I am amazed I found this subject. My son is now 6. He is very stong willed, stubburn and most times hard to get along with. I believe my husband and I babied him...

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Sweden says hello

Hi! I am the mother of a little boy who was born with multiple synostosis. He was operated on at 4 months of age and everything turned out fine. He now will have to go through...