My three month old has trigonocephaly

Amanda - posted on 06/07/2013 ( 4 moms have responded )

4

10

0

My three moth old was dignosed with trigonocephaly, twy are rushing his surgery because his sutra has closed very tightly. Iam just not sure if Iam mentally repaired to go though this! I have watched videos on YouTube of the way the babies look after surgery and ppl say that you will not even reconiZe your own child. I don't know how I will find the strength to give him to the nurses the day of his surgery. I been so depressed since I found out my perfect little happy boy had trigonocephaly. I also have two older children who are very upset about this also. I don't know how I am going to get through this.

4 Comments

View replies by

Amanda - posted on 06/13/2013

4

10

0

His name is Joseph. I feel the same way. Iam angry, sad, jealous of others with kids that don't have this. I don't think Iam strin enough to five him to the nurses. I keep imagining that moment and I just vision him having to be torn out of my arms and me screaming like a crazy person. Joseph's surgery is going to be sometime late July. They don't have a exact day yet they are waiting for him to heave a good blood flow and end of July is considered a rush since his skull fused together extremely tight. Why did this have to happen to our beautiful innocent babies?!?

Sarah - posted on 06/12/2013

4

0

1

i tell my family evryday.. how am i posed to say bye to my child as the nurses take her away and then she wakes up hurt and in pain. i dont want her looking at me thinking "mommy why did u let me get hurt". im so very scared also amanda. i cannot even explain my feelings. The hospital finally got back to me today with a possible surgery date of August 14th.. its so very hard to wait cus i really want this over with and behind us. i cry myself to sleep almost evrynight praying shell be okay and that shell nevr need another surgery after this. What is ur babies name so i can pray for yours also?

Amanda - posted on 06/09/2013

4

10

0

It's so scarey. As a mom we are suppost to be able I protect our kids from everything and I don't a any say in this situation. It's gets me soo angry!

Sarah - posted on 06/07/2013

4

0

1

i just found out my daughter has craniosynotosis, lambdoid actually. the rarest form. im 23 yrs old n so very scared for her. waiting for a surgery date now. shell be a year old this 20th. i feel ur fears cause im also very terrified of this surgery but it has to be done.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms