my babys 3 weeks old and has a VSD, is there any moms whos child has this and went thew the surgery

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Corrina - posted on 03/25/2009

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My son was born near a month premature at only 4 pounds with a VSD. When he was first born the heard the "murmur" and things went from there (he had an ultrasound and discovered 3 holes). He was followed by a wonderful pediatric cardiologist on a monthly basis as he wanted to avoid surgery if at all possible. All the Dr.'s that I ever came in contact with were of the same opinion and all stated that it's possible for certain holes to close on their own as children grow. (depending on location, symptoms etc) My son was a pretty lethargic and I guess sickly baby. He was hospitalized numerous times for respiratory infections though his lungs were developed and fine at birth. He had pneumonia 3 times before he was 4 mo old and was on an albuterol inhaler. All these problems related to his heart condition. He ate but didnt gain much weight. Finally he was showing more and more symptoms and his cardiologist decided it was time for surgery. He weighed just over 10# at 6 months old :( BUT he went in for the surgery, which terrified me beyond belief, they did an amazing job! He was in the hosp 5 days but it did the trick, he started growing better, had more energy......and hasn't had ANY issues or illnesses that he has had to be hospitalized for since. Just your average colds etc. It IS scary and it IS a risk but I can't imagine my very active son with the quality of life he had as a baby. He just turned 3 years old and has enough energy for 6 kids. Now when we go for yearly checkups at the cardiologist, I tease and ask him to please put just one hole back in :)

Sarah - posted on 03/25/2009

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My son was born with a large VSD, he had to gain6lb before they would do surgury on him he was 5 motnhs when surgury took place at brompton hospital london. The surgury took 6 and half hours but has made such a change in him he is now gaining weight and got colour to his face. Good Luck and remember your not alone. feel free to email me if you want to ask any questions or just to chat sarah

Roweda - posted on 11/08/2013

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my son has moderate to large vsd and mild infundibular pulmonary stenosis, he will be 2 months old tommorow. His still under observation since he is gaining weight and breatfeed well. What i am just really worried of is he breaths fast. As a mother im still hoping his vsd will close on its own coz its breaking my heart now thinking he'll undergo surgery in the future.

Amy - posted on 12/11/2013

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My son was 5 weeks when he had open heart at uva. He had a 5.9mm hole. I was hard to wait but I had lots of family and friend waiting with me. I asked God to work through the surgeon because I only trusted him with my baby. Now he is 8 and healthy with no problems. He does not have to see the heart dr again until he is 11. God got us through it. Praying for you and your little one.

Kathy - posted on 03/13/2010

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My son was born with Ebstein's anomaly and three vsds, He had open heart surgery when he was one year old. It was the hardest thing his father and I have ever been through. But today they have great Doctors and staff! My son is now four years old and only has to see the cardiologist once a year now! Good luck to you and your baby!!
Kathy

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Daniellemcclarycox98 - posted on 10/10/2018

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My oldest baby was diagnosed with a VSD, ASD, and a coarctaion of the aorta when she was 2 week old, had an open heart surgery at 3 weeks old, and again at 1.5 years old. She is now 15 and is a cheerleader, plays volleyball, and is in dance, you cant tell other than her scar on her chest, she is also taller than me.lol

Dominique - posted on 10/04/2016

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How is everything now! My daughter may need ohs for a vsd. I'm praying she does not have to! Please Pray for us

Dominique - posted on 10/04/2016

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Hope all is well, I'm following up with the vsd... Did it close? When diagnosing was it large or small?

Tiffany - posted on 03/26/2010

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my son was born with VSD and had open heart surgery 1 week after his 7th birthday. He is now 13 and is doing well. He still has some leakage from his aortic valve, but from what the cardiologist says he can still live a normal life with that. His cardiologist even gave him permission to be a kicker on the recreational football team in our city ( there are chest protectors specifically for children who need the extra chest protection.)

Katrina - posted on 02/28/2010

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My oldest some who is now 4 was born with a vsd. The doc thinks it may close as he gets older so we go for annual check ups. My second son was born with a vsd and they said he would need surgery at 6 months. He ended up having open heart surgery at 2 months and they closed up 8 holes. The things surgeons can do now are so amazing and repairing a vsd is a very common procedure. Knowing that didn't make it any easier for me but it is true. And like someone had mentioned kids are very resiliant! My son is now going to be 3 and he is doing great. He is so active.

Tracy - posted on 02/08/2010

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my daugfhter has ASD, she hasnt gone through the surgery yet but they said seeing the hole is very small it could have a chance of closing on its own but if it dont by the time shes 4-5 she has to get a plug inserted through the leg and put in her heart. otherwise it will cause many heart irregularities and she wont be able to participate in sports. but the doctor said the surgery would be quick n non worrisome. i know when i first found out about it i was a wreck but im am somehow coping with it alot better than from then. but it also depends on the size of the hole im guessing. i hope for the best.

Melanie - posted on 02/07/2010

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My daughter was born VSD also, had open heart surgery at 6mo. of age she is now 3 and doing great. Kids are so resilliant.

Jessica - posted on 02/01/2010

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My son has a VSD. We were sent to a pediatric cardiologist and they done ultrasounds and EKG's on him. He was either a month or two when it was found. This doctor said if it had not closed by his one year birthday then he was going to do surgery. But we ended up going to another cardiologist and he did ultrasounds and EKG's too and we took our son every three months and he said he didn't see no reason for surgery, he didn't give my son limitations or anything like that. The doctor says with time and growth it looks to be closing on its own. So we don't go back to see the doctor untill my son is three or near three years old. I would talk to your doctor about your childs condition because every child is different. Good Luck to you!!

Mandy - posted on 11/10/2009

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my daughters condition was someone picked up just after birth when she went blue it took a mth too recieve a clinical diagnosis for both downs and heart

Mandy - posted on 11/10/2009

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hi im a single mummy just had my 3 child on the 2nd august she was born with down syndrome asd and vsd its now thre months down the trck just undergone surgery on the 2nd nov she is doing great feeding better awake more its like beeing handed a brand new baby with the cardiac side of thing the rest for me will be a life long learning journey im in nsw australia where r u? do u have any other kids i have a four yr old and a 2 yr old but ther is nothing wrong with there hearts thankfully it has been stress with just one in that situation

User - posted on 03/31/2009

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Hi our son was born with a VSD he had open heart surgery at 4years old, he is now 27 years old and is now a father himself. He attends for check ups every 5 years but otherwise he is fine.

Tracey - posted on 03/26/2009

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Quoting Kaitlyn:

my babys 3 weeks old and has a VSD, is there any moms whos child has this and went thew the surgery




my son was born with a vsd but it wasnt detected until he was 18 months old,he was prone to chest infections,always had 1 at least once a month,we had to take him to birmingham childrens hospital to have an ultrasound which we found out he had a hole the size of a 50p and 2 tubes which carry the blood to the heart were to narrow.so he had to have keyhole surgery to correct all of this.he was in hospital 2 days.the day he came home we were told to make sure he didnt run around and try and keep him still,that was impossible,he was and still is 12 months later hyperactive all the time but before the op he was always tired never really did much.he had a check up last christmas and everythings is fine.i was terrified before his op kept imagining all sorts.he will be fine hun.xx

Mélanie - posted on 03/25/2009

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My son was born in dec 08 and has 2 VSD and a narrowing of the pulmonic valve. His pulmonic artery is not growing at all, so he will need open heart surgery soon to correct those problems. At first they thought that it could be repaired in 6 to 12 months, but wich each heart US, they find his condition is worsenning. He is now 3 months old, due for his surgery in april. What kills me is that he is breastfed, gains weight like crazy, he looks like a little buddha and to look at him, you would never know he was cardiac. People think i'm lying to them, when I say he's cardiac. I hope the surgery goes well...



Does anybody know if it is still possible to get life insurance for these babies when the surgery is a success and no cardiac problem persists??

Jessica - posted on 03/20/2009

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my son was born with a narrowing of the aorta, two holes, a valve that was not closing and another vein that was narrow. He had surgery at 13 days old.  They did only one thing and that was fix his aorta.  He did have a feeding tube for 5 week after the surgery because he was not eating well. He has difficulty gain weight as well.  His holes have closing on their own and the valve fixed it self.  We have an amazing hospital is Illinois Hope children's He was in the hospital for a week after his surgery and is a happy healthy looking baby boy. He is 9 months old.  



Hope all goes well i would get a good pediatric cardiologist. and get an eco done.  Research your hospital as well you want the best surgents.  HIs surgery took 1 hour 30 minutes.  It wasn't as bad as we were making it out to be but am so glad they found it before something bad would have happened.

Kathryn - posted on 03/10/2009

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HI Kaitlyn - I have 5 year old twin girls and one of them was born with 3 holes in her heart. She had a VSD, ASD and one of ther viens was on the wrong side. It is very common for kids to live, grow and prosper  with a VSD. The bottom part of the heart is made up of muscle (that  is what pumps the blood thru the heart) and as the muscle is used it can actually make the VSD smaller.



They thought they could hold off her surgery until she was 2 or 3 years old. Unfortunately it was very difficult for her to gain weight bc her heart was working so hard. Both her holes were considered large and caused her heart to work harder than normal. She ended up having open heart surgery at 3 months old.  They were able to repair the holes and they put in a piece of gortex to help move her vein to the correct side.  We are very lucky that we live close to Children's Hospital Boston. We had a wonderful Ped Cardiologist and the whole team at CHB was wonderful!  



There are some wonderful Family support groups if you are interested in gaining more information. There is a Little Hearts Organization that can put you in touch with other families who are in similar situations or who are close to your area. Let me know if you have any other questions. Good luck and stay strong!



Sending Heart hugs



Kathy

TAMMY - posted on 03/10/2009

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my daughter was born with a major heart defect she had an interupted aortic arch she had open heart surgery at 9 days old an is now a very active little 3 yr old u wudnt know she had a heart defect good luck to i all i am sure everythin will b fine they can work miricles nowerdays good luck and congrats on ur baby x

Julie - posted on 03/07/2009

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Our  youngest  son was born with a VSD and other heart problems and has had 2 open heart surgeries so far and will have to have further surgery in the future. The VSD was corrected in the 1st surgery and has caused no more problems.  He is now 6 years old and is full of fun and energy. My advice to you would be to ask questions all along the way and NOT to worry as its amazing what can be done these days. The heart surgeons are wonderful.



Good luck.

Erin - posted on 03/07/2009

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my daughter was born with other issues beside the VSD and at 8 days old she had open heart surgery to correct.  She came threw fine.  Since then she's had multiple cath procedures and a second open heart surgery.  She'll be 3 in march.



I would talk to your doctor to find out more about your childs condition.  These kinds of surgery are a lot easier these days.



Good Luck!

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