My 15 month old preemie hasn't outgrown his apnea. Has anyone else gone through this?

Emily - posted on 07/16/2012 ( 1 mom has responded )




My son was born at 31 weeks and had what they called at the time apnea of prematurity. In the NICU he would desat but only needed intervention a few times to start breathing again so they called it self resolving and told us that he would outgrow it. After he left the NICU he continued to have spells but only like 1 a month and he was always breathing by the time we could get to him so still "self resolving" however I'm wondering how much the very loud alarm going off 5 feet from his head has to do with that...And now here we are 15 months later and he is still having spells. In fact since around 11 months they starting getting more frequent as often as 2 or 3 a week. His doctor has refered us to a polumonologist which he will see in August. Everything I have tried to look up makes this sound very rare and even the sleep disorder clinic that he will be going to sounded supprised that he still hasn't outgrown it. Has anyone else had a preemie with this issue? What was the prognosis? Were they able to do anything or were you just told to wait it out? Thanks in advance for any advice!!


Christie - posted on 07/24/2012




My 24 week premmie has Apnea! He is on O2 to help prevent it! I also was concerned that the self resolving episodes were from the monitor waking him up! But he also has the ones we need to stimulate him to start the breathing! They used an over night sleep study to determine Jamins problem! Good luck and hopefully they resolve soon!

1 Comment

View replies by

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms