Very bad reflux

Charmian - posted on 02/13/2010 ( 14 moms have responded )

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One of our other "Kango Moms" has had a little girl in her care since October. She was born at 30 weeks and weighed 1kg, and she suffers from extreme reflux. they have tried various formulas, and have now seen a very slight improvement on a lactose and sucrose free formula, but her reflux is really still very bad. do any of you have advice for us please?

14 Comments

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Sarah - posted on 03/07/2010

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my son was diagnosed with GERD and the doctors told me that i needed to lay him in his carseat when he sleeps and thicken his formula with baby cereal. that seemed to help alot! i also gave him over the counter gas meds for infants and infant nausea meds for when he would get really bad. other than that i just walked the floor alot and kept him away from unneccessary stimulations like loud noises and tv and strange peoples. i hope some of this helps!

Caroline - posted on 03/07/2010

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Give her our good support vibes! My littley is on Losec and gavison. A very helpful website is a New Zealand site called www.cryingoverspiltmilk hope this helps. Excellent hearts looking after newborns and then giving them up - good luck

Caryn - posted on 03/06/2010

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Hi there, I have had two very premmie babies, (Teagan 28 wks, 1.25kgs & Erin 26 wks, 1kg). Both of them suffered with extreme reflux, Erin had an operation known as a Fundoplication Nissen about a week after being released from NICU, it is basically to reshape the stomach and close the hole that causes reflux. Teagan suffered a lot longer and they couldn't believe that she had the same problem, was always vomiting and in pain constantly. She had a partial fundo, where they reshaped her tummy and partically closed the close when was a year old. There are complications with these ops, from wind being caught, to tightness, etc, but since having the ops done, both my girls are MUCH MUCH better, didn't suffer with choking or vomiting or pain after that! If you think it's severe, get in touch with a paediatric surgeon for review, they will run a number of tests to determine the severity and they will give you options, which could include NON surgical treatment as well!! Good luck. TBH I don't think the milk has anything to do with it... milk itself can't cause reflux :)

Anna - posted on 02/16/2010

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Ask for a referral to a GI specialist. My boy had that. He is now on Alimentum formula and Prilosec. His medicine needed to be increased and then finally, he was pain free.

Sandy - posted on 02/16/2010

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My bub was born at 31+4 and had reflux too when I stopped breastfeeding him after 2 months. We tried several formulas until I was advised by the Child Health Nurse to put him on the Novalac sweet Dreams formula. We havent looked back since!

Dorothy - posted on 02/15/2010

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My daughter was on domperidone and renitadeen (don't know the correct spelling) and I was giving her the lactose free formula. One day she finally stopped the projectile vomitting. She had a bad gag reflex for quite a while but all is well with her now. It took a while.

Anna - posted on 02/15/2010

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Oh! Another recommendation of mine is to get a hand blender tool from Babies R Us. They are about $5 and mix formula WAY faster and MUCH better than by shaking. My baby was vomiting up about one meal a day before we got the mixer. Now he never vomits.

Laura - posted on 02/15/2010

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My baby was born at 32 weeks and also had extreme reflux, after 12 weeks of being vomited on when he had finished breastfeeding I tried him on a few 'tummy caring' formulas and found the only one that actually worked was SMA STAYDOWN MILK he stopped vomiting so much and did not cause him any other stomach problems. If you are able to get his milk then do it, it was brilliant! He is now 8 1/2 months old. Best of luck xxxx

Anna - posted on 02/14/2010

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My son, born at 30 weeks, had the same problem. His pediatrician had us change formulas and got us a referral to the GI department. Our local Kaiser is excellent and has Pedi GI docs.

I recommend Alimentum because it's easier to find than Pregestimil (you can get Alimentum at Target and Babies R Us, but there's an even cheaper place online out of New York). We tried Zantac, but the mint flavoring made things worse, so now he's on Prilosec.

Feed your baby in a sitting up position, never laying down, and keep her upright for 15-20 min after each feeding.

My son just couldn't get comfy in his co-sleeper, so we bought a swing and he sleeps in that. The Pediatrician and GI doc both had no issue with him sleeping in his swing, which I was worried about. Good luck!

Heidi - posted on 02/14/2010

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my poppy had the same issues but was left untreated until she showed signs of internal bleeding and stopped feeding completly at 10 wks.
i highly recommend meds and thickners, which worked well for us. she was on 60mgs of losec, very high for a baby but thats what it took to get her to drink, mind you after she had a nasal gastric feeding tube for 5 mths....... so the faster you can get on meds the better outcome for the baby and hopefully it doesnt cause a feeding issue

Charmian - posted on 02/13/2010

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A Kango Mom is a foster mom who cares for newborns... so obviously breastfeeding is out of the question... Also donor milk is not readily available in South Africa. She is currently drinking little bits at a time, very often, and sleeps for no longer than 20 minutes. We have done the swing, sling, babyseat, elevated mattress thing as well. This poor Mom is really at her wits end, and she would of course like to find a solution before her baby is placed with her Forever Family in May

Valerie - posted on 02/13/2010

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How old is the little girl now? Have the Dr's suggested prescription meds yet? Has the Dr recommended 'thickening' the formula - usually done by adding a commercial thickening agent or by reducing the amount of water when diluting the formula concentrate? This will also increase the calorie count.



My 35 wks preemie twins were on prescription Losec (antacid for babies) for months. They were put on the meds at 3 months corrected. Lily was on the meds for 2 months but Patrick was on the meds for 4 months (his was much more severe). They will eventually outgrow it but it seems to take forever while you are going through it.



To cope, I recommend that when going out, keep a complete change of clothes in the car for the entire family (Mom & Dad included). Always feed them in a sitting up position, and try to keep them upright for about an hour after feeding. Feed in small amounts; more often. Lily was feeding every 4 hours but Patrick was feeding a half bottle every 2 hours (24 hours a day, 7 days a week)



Good luck

Emily - posted on 02/13/2010

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I'm not familiar with what Kango Moms is... but has the baby tried different medications?



Also, is mom able to breastfeed? Sometimes being on formula can make reflux worse as it's so much harder to digest. Or maybe consider donor milk.

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