
Kim - posted on 07/13/2010 ( 49 moms have responded )
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My Son, 4 1/2 has no 'official' diagonsis. We answered a questionaire and he is seeking all almost from all the sensory categories. He does not have many words. Maybe 5-6words and has been involved with a speech pathologist for 3/4 of a year with no progress. Just wondering if anyone else has gone through this with their child speaking? We spend soo much time trying to get him to communicate however nothing is working. Just want to know if anyone else has the same fustrations.
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Ashley - posted on 04/19/2011
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My almost 3 year old technically has been diagnosed with Autism, but that was done by a very proactive developmental pediatrician who wanted us to be able to hit him hard with as much therapy as possible and then revisit the diagnosis at a later date. SPD and autism are VERY similar, his OT and I actually think it might be just straight SPD. We discussed it a few weeks ago and decided that, outside of our normal speech and OT sessions, I would put all of my focus on his sensory issues. She said that, as far as he's concerned, there is no such thing as too much.
And let me tell you...he's made more progress in the last month than he has in a year and a half of therapy, including gaining 2 new words. Before, he'd master one task, just to prove that he could do it, and then we'd never see him do it again. Or he'd do something when it was just the two of us, but not around anyone else. Now he's retaining and consistent with the progress he's been making.
Sign language wasn't successful with my son either, we actively worked on it with him for a year, but he couldn't do it because of his motor planning problem (which are caused by SPD). He has been much more successful with PECS, which we modified and let him work up to the proper execution of it in his own time.
I highly recommend the book The Out of Sync Child, and the sequel The Out of Sync Child has Fun. It's all about Sensory Processing Disorder, the sequel has activities that are specifically for it. There's also a Facebook page called "No Time For Flashcards" that has ideas for sensory activities. Look into joint compression and Wilbur Brushing Protocol as well, they are great therapeutic techniques for sensory issues.
Michelle - posted on 11/04/2010
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My 2 year old has not been formally diagnosed with anything yet. I suspect Autism and/or SPD. She does not talk and definitely has sensory issues. I feel lost. One day I think for sure it is Autism, and then the next day I think "no way is she Autistic".
Heidi - posted on 02/02/2013
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My son just turned three an he hasn't come close to speaking...he will say a word once or twice..but that will be it. I've worried and worried. For 2years and I'm done worrying. He has been in ot and speech therapy for about nine months... I kept having this feeling of dread for everyday my child was not normal...I let go...he communicates everything he needs and wynts, just not by talking. And he's able to learn everything else...just not speaking.. there's physical communication that we use to talk. he may not be ready for school...he may not talk... but he can use this tablet I'm typing on just as good...loves numbers and alphabet.. and puzzles. And is fascinated by drawing and thomas the train. I count my blessings everyday and those are just a few. If he's going to talk it will be when he's ready
Sarah - posted on 08/24/2010
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My son first started early intervention for speech at 18 months, he is now 5 1/2 and just finished speech therapy. He has severe SPD. He's a tactile and aditory avoider, and proprioceptive and vestibular seeker. He also can't deal with crowds. He has a social emotional delay and adhd. I think that his speech and s/e delay have a lot to do with his spd, he just doesn't want to socialize becasue he can't stand being near people. Some kids with SPD have a lot of characteristics of Autism. That was our first intinct, bot so far no asd dx.
Lisa - posted on 10/14/2012
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My 4 1/2 year old son is a sensory seeker and has major speech and language delays. He has been in therapy since age 16 months so we have been in this for a very long time. There are a few things I suggest that helped my son immensely: 1) Take gluten and dairy (and maybe soy as well) out of his diet- we did it all at once but you can do it one at a time. We saw a drastic improvement in his sensory issues once we did that 2) See a developmental pediatrician and/or a biomedical nutritionist to get a grasp on what if any nutrients/vitamins may be missing because that has a huge effect on both of these issues 3) check out a product called Nutriiveda (original formula)- it's a food based dietary supplement that I discovered through an apraxia yahoo group and it's done wonders for my son's speech and finally 4) check out cranio sacral/brain therapy- you can find someone in your area here www.upledger.com - it really has been a miracle for my son. All of these things together, really help- his speech is slowly but surely getting there and his sensory issues are going away. Good luck, Lisa Gilinsky