Eval at the end of the month

User - posted on 01/07/2009 ( 2 moms have responded )

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Hi Everyone,

I'm not officially a SPD Mom; but everything I read confirms my suspicions.

My son, 3-yrs, is going to be evaluated at the end of Jan. For 18 mos now, I've been trying to get him help on some level. At first I thought he could be autistic. Then we just assumed (& went along w/ the diagnosis of) he had a speech delay.

Last month, I met with the Special Services Coordinator (for our district co-op) & the Speech/Language Pathologist, to write an IEP for Gabe.

The SLP asked me a handful of questions, looked at the SSC & me & said that there are some red flags & she was thinking 'sensory issues'.

He hates going up/down steps. Cries when he's forced to be balanced. Can't stand food if the temp is anything but hot/cold. Dislikes being dirty. Doesn't like tags or stiff clothes. Dislikes noise or excessive lights. He's a sweet kiddo, but doesn't respond as such to certain people. He is about 50% understandable (which is up dramatically in the last 6 mos). He hates eating. Throws tantrums at mealtimes. And at some points in the day, will have a meltdown if my 5 yr old just touches him.

I'm an elementary teacher, my husband is a teacher as well, but neither of us had heard of 'sensory issues'. I'd never heard of SPD until I stumbled on this page.

We're frustrated, just want some help, & want our son to have a day where he isn't extremely upset by something.

I'm hoping the eval at the end of the month (described to me as a morning of tests...Gabe will be playing most of the morning w/ an OT eval & a PT eval sprinkled throughout the morning) will give us some answers & get some therapy going.

Any advice?

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[deleted account]

hello! I'm a mom of a 5 yr old who was diagnosed at 2.5 yrs with something called tactile defensiveness... she has some auditory sensitivity, and the whole not wanting her feet to leave the ground... so i understand what you are going through... One thing that has really helped us a lot is a lot of swinging & bouncing on a trampoline... we got one of those big ones for our backyard & it really helps her.... good luck with your evaluation.... we also did the "brushing" protocol for 6 wks which helped drastically when she was 3...

User - posted on 01/07/2009

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I meant that he's upset by food with temperatures that aren't room temp.  Meaning, if it's the SLIGHTEST bit warm (or cold), he refuses to eat it...he'll even start crying.  It took him 2+ years to even TRY ice cream.

 



Quoting Amy:

Eval at the end of the month

Hi Everyone,
I'm not officially a SPD Mom; but everything I read confirms my suspicions.
My son, 3-yrs, is going to be evaluated at the end of Jan. For 18 mos now, I've been trying to get him help on some level. At first I thought he could be autistic. Then we just assumed (& went along w/ the diagnosis of) he had a speech delay.
Last month, I met with the Special Services Coordinator (for our district co-op) & the Speech/Language Pathologist, to write an IEP for Gabe.
The SLP asked me a handful of questions, looked at the SSC & me & said that there are some red flags & she was thinking 'sensory issues'.
He hates going up/down steps. Cries when he's forced to be balanced. Can't stand food if the temp is anything but hot/cold. Dislikes being dirty. Doesn't like tags or stiff clothes. Dislikes noise or excessive lights. He's a sweet kiddo, but doesn't respond as such to certain people. He is about 50% understandable (which is up dramatically in the last 6 mos). He hates eating. Throws tantrums at mealtimes. And at some points in the day, will have a meltdown if my 5 yr old just touches him.
I'm an elementary teacher, my husband is a teacher as well, but neither of us had heard of 'sensory issues'. I'd never heard of SPD until I stumbled on this page.
We're frustrated, just want some help, & want our son to have a day where he isn't extremely upset by something.
I'm hoping the eval at the end of the month (described to me as a morning of tests...Gabe will be playing most of the morning w/ an OT eval & a PT eval sprinkled throughout the morning) will give us some answers & get some therapy going.
Any advice?





 

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