Getting Dx

Sharla - posted on 12/24/2008 ( 5 moms have responded )

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I'm not sure if my daughter's issues are SPD...how does one go about getting a dx? Our dr did not seem to know much about it at all. Is Easter seals the right place?

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Kelly Smith - posted on 03/02/2009

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An OT may not be able to dx a condition, but they will treat/ work with  the symptoms that your child is presenting. FInding one that deals with children will be very helpful...Help Me Grow or your local school district could help, also:)

Lori - posted on 03/02/2009

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If you want to search for a private OT, make sure she specailizes in Sensory Processing Disorders! Also, it helps if she has a Behavior background. This is key to finding the proper care.

Lori - posted on 03/02/2009

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What state do you live in? I live in Ohio. Our ages 0 -3 yrs old state/federal funded program is www.ohiohelpmegrow.org. I believe every state has the same type of program, but they may just call it a different name. It is not based on your income and there is no charge for the program. You just have to contact the agency in your state and an Early Intervention Rep will contact you for an evaluation. Once my son worked with the EI, she had him evaluated by a SLP (Speech Language Path) and an OT. (A friends son had more issues so he was also evaluated by a PT - possibilities are endless based on concerns of the child). My son rec'd fantastic care from all of the various reps. They came to my house and I also had to take him to addtl OT and SLP sessions. Again, all free! We also chose to start private OT and SLP since our insurance covered 80% unlimited. Now that we have new insurance, we are having issues getting private OT due to billing codes. Our son is now 4-1/2 yrs old and the SPD is out of control. We just met with a Behavior Psychologist, who has a SPD OT starting in a month. Hopefully, she will know the correct billing because I am losing my mind with his SPD issues. Just when you think it is under control, something sparks a new issue. If you would like to give me your state, I would be happy to research the state program for you. Please let me know.

Tera - posted on 01/05/2009

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We were very fortunate that our pediatrician actually diagnosed our daugher when she was 2 years old. BUT others aren't so lucky, and I'm sorry that you have to deal with that. My suggestion would be to call an Occupational Therapist in your area that does sensory therapy and get their suggestion on pediatricians in your area that they've worked with and try to get in to one of them. Or maybe the OT would do the testing without a referral, I don't know. But OT's know pediatricians that know a lot about SID/SPD and can get you the referral you need after they see your child. DON'T GIVE UP! Keep looking, keep trying. If there is anything I've learned with my daughter with SID it is that I am her advocate, I have to fight for her whether it at school or whatever. If you feel there is an issue keep looking.

Robin - posted on 12/29/2008

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From what I understand, an Occupational Theorpist is the best place to get a dx. Our Pediatrician had no idea what to do with Owen (my SPD kid.) It took me over a year to find out what was going on. I sell to physicians every day & I have only known one (an ENT) who had any idea what SPD really was. Also try looking into your county's behavorial organization, they might be able to offer free testing, to see if your child qualifies for services from them. Hope this helps.

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