I strongly believe my son has this disorder!

Kristi - posted on 09/13/2009 ( 9 moms have responded )

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I have a 2 year old son who i thought was just having terrible twos until i realized that his behavior is way out of the ordinary. My son will throw himself on the floor at the drop of a hat, if he is angry because he didnt get his way he will run around the house until he can find something he can smash or break. he just doesnt seem to get across what he wants or needs. he will only eat pasta. if there is any little piece of lint or hair on the floor he gets disgusted by it and will flip out until i pick it up. he hates having his hair washed bath time is fine until its hair wash time he wont let me brush his teeth but he is fine when he brushes them which consists of sucking the tooth paste. taking him anywhere is horrifying i dont go anywhere with him because is he horrible. if i pick him up during a tantrum he pulls my hair kicks me its horrible. he doesnt play well with other kids doesnt share or pushes them. he hasnt slept threw the night since he was 5 months old. i just dont know what to do because i strongly believe there is something wrong with my child but my parents (which whom i live with) think im making up excuses for his bad behavior. dont know what to do any suggestions???

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[deleted account]

Get a referal to a specialist! Also try taking a blanket and wrapping him like a burrito (keep his face uncovered) and have him roll himself out. Do this several times. The pressure helps.
I would also recommend the elimination diet (google it for details) or at the very least cut out gluten and see if that helps. My son has SPD and Celiac. Once we cut out the gluten his therapies started working/helping much better since he was no longer in pain.

Good luck and remember that you are doing a good job, don't let the judgement of others get you down. We can all relate to you and understand

Chelsea - posted on 12/14/2009

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A little side note on the brushing that was mentioned in another post. It can work WONDERS with an spd child! My 4 year old was diagnosed with spd at 2 1/2 and we have done brushing and also deep pressure compressions on his joints for over ayear now. When Judah gets way overloaded as we call it i sit him down (if I can ) and start doing compressions on his joints he will immediatley sink into me sigh and be completely calm...When and if you are able to consult an occupational therapist ask about this it can really help! Dont give up! help is out there! My dad still wont except my sons diagnoses and its been almost two years. Just go with your maternal instinct and you will get what your son needs.

Stacey - posted on 11/01/2009

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Get a referral to an occupational therapist from the pediatrician... there's no harm in an evaluation, and an O.T. can diagnose sensory processing disorder. My son is now 8, and I first came across spd a few years ago, and everything about my child finally made sense. My son didn't touch a sticker until he was 4, he wouldn't touch a band-aid until he was 6. His diet is very limited. He never did finger-paint and hated to be messy. I stood him up on the grass barefoot when he was a baby and he screamed like I had stabbed him. He still cried in the shower when it's time to wash hair. Hair cuts still produce tears and a tantrum. He finally does brush his teeth, but I have to watch that he'll brush all of them. He was the child at vacation bible school who was on the floor rocking back and forth in tears, with his hands covering his ears while the other kids were singing and dancing. Even after realizing that he had this disorder, it took 2 more years to get his pediatrician to see that he was lacking in motor skills and had some extreme sensitivies to touch, taste, and sound. Finally, he is now in O.T. and is slowly making some improvements. Good luck to you. There is a book called "The Elephant in the Playroom: Ordinary Parents Write Intimately and Honestly About the Extraordinary Highs and Heartbreaking Lows of Raising Kids with Special Needs" by Denise Brodey that I highly recommend. For any parent of a child with special needs, who's ever felt embarrassed or frustrated in public... this book will make you smile, and reassure you that you're not alone.

Michele - posted on 10/20/2009

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Like the other moms said, you are the most important advocate for your child! No one knows him like you do. You know everything about him since the day he was born. Don't let anyone tell you that they know what is good for him more than you do! Get him to an Occupational Therapist as soon as you can. Ask his pediatrician for a referral if you need to. My Early Intervention program told me where to take my son when I told them I thought he had sensory issues. Even then, lots of people will try to tell you how to raise your child, people in public places will give you LOOKS. Just ignore them! The only people who matter are you and your child. You have a group of moms here who understand if you need to vent or get help. Good luck.

Mary - posted on 10/13/2009

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Kristi, definitely follow your instincts! It took almost two years for my now 5 year old son to be diagnosed. Everyone in my family, husband included, just said it was bad behavior. I even had to tell my mother-in-law to back off one time when she was pushing my son into a total melt down! It is very tough but I totally understand your frustration! It may be a struggle but get him in to a specialist! Occupational therapy did wonders with my son! We are still working on the behavioral issues.

Shelly - posted on 09/21/2009

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I was wishing I would have gotten my now 5 year old in sooner. His behavior wasn't quite as extreme, but he had lots of little quirks and frustrating behaviors. I took him to an Occupational Therapist that some friends recommended. I would highly recommend you taking your child into a specialist in your area. Believe me, after 3 sessions, I can easily say it's well worth it.

Jennifer - posted on 09/16/2009

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Hi Kristi. My son Nicholas will be turning two in a couple days and he is doing the SAME exact things yours is doing. I took him to his regular doctor who then referred him to speech and behaivor therapy. The first thing they diagnosed him with is sensory processing disorder. They told me that his eating, behaivor, and disgust with many things is all part of it. I do not take my son out of the house when I don't have to. He only eats baby food yet, won't let me wash his hair, brush his teeth, or have tags on his clothes. When he gets mad he either throw something or hits something. Right now, I don't allow him to be around other children because he is very mean to them. I thought his behaivor was all caused by terrible twos until my family brought it to my attention. His full diagnosis is oral aversion, sensory processing disorder. He goes to therapy two times a week. Right now we started something called brushing. It's a small soft bristle brush they give you and you brush it over their limbs every two hours. Afterwards you do joint compressions. Eventually they said I'll be able to do normal things with him again. I really think you should take him to a specialist. The sooner you get him in the faster he can respond. I know exactly what you're going through and if you have any more questions about it, I'm here to help!

[deleted account]

Hi Kristi. PLEASE PLEASE PLEASE, follow your instincts. My son, who is 4 has Sensory Processing Disorder and I've noticed that something wasn't quite right since he was almost 2. Loud noises sent him into a frenzy; picky eater; constant movement & throwing himself around. My parents were like yours, they're old school & believed that the he'll will be fine, that he's still young. But I stuck with my gut & I was convinced that a lot of his behavior just wasn't normal. It turns out that it's not. Please talk with his pediatrician and get recommendations asap! My son is now getting speech therapy & occupational therapy. The help you need is out there. Stick to your guns & go get it! You have to be the strongest advocate for your child. Best wishes to you and your little one!

Betti - posted on 09/14/2009

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I would definitely get him looked at by a specialist. Don't let others tell you that your instincts aren't correct with your child. You know him better than anyone.

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