I suspect that my daughter has this disorder

Annette - posted on 01/28/2010 ( 6 moms have responded )

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My daughter is 2 and half now and has always been "spirited" (aka-difficult). As a newborn, she would only stop crying if I laid her on my chest and gently bumped her up and down. Everything she does is done carefully. She would not sit up on her own (even though she could) for several months. Someone had to sit behind her and "hold her up". She did not walk or crawl until she was nearly two years old b/c she didn't want to fall. All "talking" toys are thrown across the room as soon as they say a peep and cause screaming. Brushing or washing her hair is a battle filled with screaming and swinging fists. I have to literally hold her down while my husband washes her hair. She has always had stranger anxiety, but she fell into that "phase" and never came out. In the store, having other shoppers in the same aisle is unacceptable. She screams and clings onto me.. Even if the other people aren't talking to her or looking at her. We can no longer even go to the zoo, which used to be her favorite place. She gets excited about going, but once she sees people she doesn't know, she screams and cries and wants to go home. I have talked to her dr, but I am not sure that he is getting the severity of the situation. He wants her to watch videos with live people interacting and playing. She watches too much tv already, in my opinion. He says he is making a referal to someone else. What type of professional this will be he has not told me. I am concerned about my daughter and am worried that just getting her a proper diagnosis will be an uphill battle.

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Kristi - posted on 03/02/2010

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I would suggest to definitely try get a proper diagnosis. I had suspected my son for a year, and just kind of put it off. I got him evaluated a few months back and come to find out, he does have it. I am now recieving help not only for him, but for me too.

Jennifer - posted on 03/02/2010

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Unfortunately .. even in this day and age... not all OT's are good for this issue.. there are some OT's that specialize in SPD.. you need to find an great OT also finding a cranial sacral therapist has done miracles for my son and they often work closely with the right Occupational therapists that understand this condition... My advice would to start looking at the more homopathic clinicians - sometimes traditional pediatricians and even some in the therapy fields have no clue..

Robin - posted on 01/30/2010

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I think that her past history will make it easier for OT to evaluate her for this. I would definitely call the Early Intervention program and have her evaluated. Don't worry about whether they will reject her just because they've seen her in the past...they shouldn't, however, if you wait until she turns three, it is almost impossible to get help, either through early intervention or the schools. Then it becomes all insurance and private pay. If she is on the roster prior to turning three, the early intervention will keep her on for awhile...varies by state. The sooner the better.

Annette - posted on 01/30/2010

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One of the problems is that she has already been evaluated for early intervention when she was 16 months old for her lack of crawling and walking. She was evaluated by a physical therapist and an OT. As a result, she received physical therapy twice a week until she was nearly two. When I began to suspect that she may have SPD, I looked back at her evaluation and saw nothing to indicate any problem other than gross motor skills. But I also rememeber that these women were mainly focusing on her non-mobility.

Robin - posted on 01/29/2010

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All states have a Birth to 3 program. In NE ours is listed under the State Government Health and Human Services website. Also, talk to your pediatrician about your concerns. They should also know who you can contact for further evaluation. The birth to 3 program evaluation is provided by the state at no cost to you.

Melissa - posted on 01/28/2010

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Depending on what state you live in they provide services for children up to 3 years old. I live in KY and we have what is called First Steps, and my son has an OT and Speech Therapist that come out and work with him. They have a few therapists and service come to your home and assess your child, and they will know right away if she suffers from SPD. My son did not walk until he was 19 months old. Was a really good baby, no fussiness or anything until about a year ago. He does not sleep well, will not work on potty training now, he'l lbe 3 in March. He is a triplet, so he has done well so far, his brother and sister have made his social skills a little better at times. We are going to get him tested for Autism as well, I am pretty sure he has Asperger's, which some time, but not all the time can be a part of it. But it's hard to get them tested for Autism while they are that young. I would make sure to follow up with her pediatrician on who will be contacting you, because it doesn't take long to get the process started. Look at your state's commonwealth website, and there should be more info on what program they have for children that young. Good luck to you and your daughter and hope it gets better for you. Therapy helps a lot, just make sure you and her get along with them and bond with them, they will do more if they like their therapists, you do have a right to fire them and get them replaced. We had to do that with the first OT we had, she did nothing for him and he did not care for her.

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