im very new to SPD can anyone offer advice?

Nikki - posted on 11/17/2010 ( 3 moms have responded )




i suspected somthing was going on with my son. from the time he was born we have had one issue after another. several people said i was insane and hes just a normal 2 year old. i knew better. FINALLY after 2 years of pushing that there is somthing going on i got the word from his OT that he has SPD.

I understand a little of what it means for my baby. and it explains alot of the things that have happened with him in his life. but I cant find books, i cant find much info on it. i live in australia so if anyone knows anything here or even just anywhere on the web to look for please it would mean alot if you could help me out i have no idea what im doing.



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Amy - posted on 11/23/2010




Nicole, there are books out there 2 for sure that will help: Out of Sync Child (explains SPD), and Out of Sync Child has Fun (fun activities for children with problem areas); my 5 yr old daughter is believed 2 have SPD; not 100% yet, b/c of other tests are being done to ensure a correct diagnosis; however, since she has been in in and out of OT, PT and ST since the age of 2 yrs, and looking over all of the evaluations from all the theropist she has seen, i'm sure she has it from the checklists taken; now that i have an at home remody for her, her anxiety is much better now; SPD is also known as Sensory Integration of luck and i hope this helps; i honestly didn't know much about it myself until i read up on my daughters evaluations over the last few years from OT/PT and researched it myself;

Christy - posted on 11/20/2010




I am mom to a 6 year old with SPD. He was diagnosed with it when he was 2 1/2. It is a vry complicated diagnosis to understand sometimes. It took me awhile to really understand it. Someone once described it to me as, everyone has things in their body that go for different parts to tell your brain what sense something is. For the average person it is a straight line to your brain. In someone with SPD it is a very jagged line. So by the time it gets from their hand to the brain it has become scrambled in the process and the brain doesn't understand it like it should....if that helps any. It has been very long road for my son and we have even more to over come. With my son he has a little of everything, he is not either over or under sensitive, but both. For instance. Smells are horrible for him, his over sensitive in that area. He cannot use a public restroom because the smell to him is horrible, where it would not normally bother you or me. He is over sensitive to sound also. A beeping sound that noone around even notices drives him crazy! He is undersensitive when it comes to touch. He has to have alot of touch and stmulation. He loves to be sqeezed. We have alot of behavior problems. Stress can be a vey big problem for SPD kids as they do not know how to handle it. My son gets very upset very easily and does not know how to control it. We have learned to do things like rocking, patting his back or singing to try to get him to calm down. Sometimes they work,sometimes they don't. The SPD causd him to have problems in areas like his attention span and ability to sit in a seat at school, but with the help of an amazing teacher he has come to be able to sit still and do work all day long at school. I think every kid with SPD is different, it affects them all in different ways and as he gets older with help[ he will learn to overcome many of these things. There will also be new things that come along as he gets older and is introduced to new things. When my son was young it was very hard for him to learn anything because it was so hard for him to pay attention with the SPD, he is behind developmentally as he was growing. I an from the US soI don't know how it works out there, but my son was put into a deelopmental preschool at the age of 2 years 9 months. Before that he spent 1 1/2 years wth an at home OT. When he got i nto public school he was first put into a regular ed class, which was a disater. And then transfered to a Segregated class with a special ed teacher. He sees an OT and a speech therapist for 1 hour a week at school and then sees one outside of school for an additional hour a week. He is involved in a Sensory group where he goes and spends 2 hours a month with other children with SPD. It has been a long road and I know he will always have many challenges, but with the help of amazing teachers, schools ad OT's he has made amazing progress, and even though it is a long road even so, he is doing great. My best advice is take it day by day. Find a great OT to start working with and SPeech therapist if need, now. The sooner, the better. Find an SPD group in your area, and talk to lots of people like you are already. There is alot of information out there, and this is a great start for you. It is a very hard diagnosis, but it is managable. They are amazing children, and I wouldm nt have him any other way. He is a very very very smart kid, has surpassed his grade level in school, and this will not stop him. A book that I read when I first found out was called the Out of Sync child by Carol Kranowitz.

This website a pretty big delection of books on SPD, it was hard for me to find books on it also.

Also, I have used this site a few times, it has alotof informaion.


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