Is this what my son has?

Milanne - posted on 12/13/2008 ( 16 moms have responded )

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My 6 year old son has not been diagnosed with SPD but his teacher suggested that i read "The out of sync child" she thinks that this may be what is going on with my son. We had him teated for autism last year but there only conclusion was that it was not autism but that there was something going on with him that would warrant more testing. So I am in the middle of the book and can see some of the symptoms in my son for ex. he crashes into things including people, he has no sense of other peoples space and his hugs sometimes hurt. On the other hand he will cover his ears for loud noise unless he is making it but can't stand dim light every light in the house must be on. I guess I don't know if he really falls into this category or not. I hope that maybe someone can let me know if this is what I should have him tested for or if it is something else. Thanks.

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Megan - posted on 02/28/2010

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The out of sync child has fun is great. Tons of activities to do at home. I had a question my son screams for basically anything. He is 22 months and has not been formally diagnosed we have been through the ringer of appointments and specialists as well. He has been recieving OT for the past month. I have noticed a difference but the screaming has started back up this weekend. Also a GREAT documentary I came across is Autistic Like: Grahmas story. It is a great story about a little boy diagnosed with ASD but later got a better diagnosis for him which was SPD.

Katharine - posted on 02/22/2010

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my 6 yr old son was disgnosed with high functioning autism early last year. the dr said that he may fall under aspergers but would put autism as then you can get help for him. there are hundreds of ways that each child could be differant and still be under the autistic umbrella. my son has no awareness of peoples space or objects and thinks that they will just have to move. if its a wall he will just scrape along it till he sort tilts the other way.he hates loud noises and will hurt me when he hears them.on the other hand he likes the lights off,so i think you will find things you recognise and things you dont. i heard someone with autism say that every one was given a handbook when they were born except him,everyone else seemed to no the rules to life and situations but he didnt and didnt no how to learn.thats the truest thing i have heard yet. either way i dont think any test can really say what is wrong or right as each child is so differant.im still learning things about my son and no i will for years to come. i hope that you get the help that you and your family need.x

Samantha - posted on 02/21/2010

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when i questioned my son having sid which is sensory integration disorder i scheduled an appt with an occupational therapist and after reading your question it reminded me of my boy with the covering the ears and my son has opposite with light it hurts his eyes so he likes it off

Marcia - posted on 07/20/2009

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What an awesome teacher your son had to know about SPD!!! My son is 8 and we just had him diagnosed. He showed signs of it over the years, but I had no idea what SPD was and I thought some of the stuff was just kind of his own quirkiness. One that stand out for me as a time that could have been picked up by educated teachers, school counselors, etc... was when my son was in pre-k, he would become hysterical when they would have a fire drill at school. He would have to be taken to the counselors office to be taken outside before the drill occurred. He would beg to not got to school if there was a scheduled fire drill. I thought this was crazy, and would send him to school...ugh, I hate that I did that. Anyway, he got over this and I thought nothing of it. If I would have know something then, I could've gotten him started with OT back then. Kudos to your teacher!!!

Milanne - posted on 01/18/2009

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Thanks to everyone for you advice and sharing your experiences. I finally feel like we are gaining ground and finding answers. It's been a long and difficult journey that I know is not over but we are coping much better with this new understanding, thanks again for all your replies.

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We had an almost identical experience to you.  It was such a relief to us.  I remember being confused in the book because he didn't fit any of the groups.   He was just hyper and hypo sensitive in a variety of areas.  I never had him officially diagnosed for two reasons:  One was we really didn't want a medical diagnosis and we didn't feel like we need one.  The other reason was that in our state (Washington), he could get services at school.  It didn't hurt that his teacher was amazing!  He had her for two years and gained considerable coping skills.  We moved and he is now at a very low key private school.  He isn't getting any services anymore but is given leeway when necessary.  He is nine now!  Watching him grow up used to be really painful and confusing.  Now, I am just elated for him every day.  That book and his teacher was a life saver.  The combination of information and acceptance has been key for us.  I wish you the best!

Emily - posted on 01/15/2009

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There is an even more up to date book, "Sensational Kids" by Lucy Jane Miller.  You can also check out their web site before you buy or borrow the book, www.spdnetwork.org Your son sounds very similar to my son.  He will run and hit his head or fall and what would cause my daughter agonizing pain doesn't seem to phase my son.  My son is considered to be undersensitive, but there are various combinations that children can be too.  I would also suggest that you might get an evaluation done by an Neuro-Developmental Occupational Therapist, not just a regular OT.  We live in the Indianapolis are so if you are close to us I can pass on some names.

Bernadette - posted on 01/11/2009

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New to the site .. my son is 2 1/2 years and has been in state early intervention since 8 months .. he has had minimal progress until we changed OTs and her focus is Sensory .. she picked his problems right away . and with her interventions just over 4 months it is amazing ... doing a sensory "diet" not food  but things to do in daily life .. and

Chelsea - posted on 12/27/2008

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Amen to that! I have got to read that book...my 3 year old slaps himself in the face, hits his head on walls etc. and now my 2 year old dgtr is doing it too. I agree with dont wait, my son started having spd symptoms or more noticeable ones anyway at 10 mos even early on there was just somehting different about Judah. I didnt have him tested til almost 16 mths and we didnt get a diagnosis til 2 and a half. Im so glad we caught it early. I was so convinced he had autism, now that this thing has a name its a bit more easy to except and help my son. I hope that helps...

Robin - posted on 12/23/2008

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One thing is overwhelmingly common with all of our initial responses from other people...they think we are overreacting, or don't believe that there's a problem at all. Similar to Susan's mother-in-law, my own husband thought I was completely off base to have him checked. He works with the mentally challanged & somehow got into his head that if it's not "obvious" (like drooling down his chin, or wheelchair) than it's not a problem. Even when we started O.T. he wasn't convinced because of all the kids with Autism & severe disabilities who were their, he thought that Owen did't belong there. It's actually very calming for me to see because when I can't handle Owen's behaviors anymore, I just think of what I could have been challenged with. Does this make sense? Anyway it's so awesome that the teachers are supportive, it helps the child a lot to have everyone on their side. Good luck & Happy Holidays!

SUSAN - posted on 12/23/2008

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I agree with everyone. You know your child better than anyone. Go with your gut. We were lucky that the OT at our feeding clinic caught our son's SPD. It is hard when so many people around you try to dismiss it, especially my mother-in-law. That is really frustrating for me. Anyway, you are doing the right thing. Good luck in finding answers!

Jennifer Miller - posted on 12/23/2008

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Yeah, I hate those comments "boys will be boys", "boys talk later than girls", "thats what all kids do"... on an on.... If my son was in a wheelchair or had drool running out his mouth, people wouldn't say anything.. but because he "looks normal" they don't understand that he is not "normal". The "subtle" signs can be the most annoying. But it NEVER hurts to check. I've had people call me a hypocondriac (spelling?), like I have nothing better to do... ha! But I had his doctors telling me it wasn't ok. And I knew in my heart, it wasn't ok. Don't listen to people who don't try to understand or observe what is going on. Like I said, never hurts to check. Please keep me posted!

Milanne - posted on 12/22/2008

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My sons teacher plans to ask a local OT to come to the school to see him. Her main concern is that he can't sit still to do his work and is afraid it will affect his learning in the future. She also wants to learn how to help him and make sure nothing she does has a negative effect on him. We are so blessed to have such a great teacher for him. I will know more after the Christmas break. Robin I totally understand how when talking to him he just seem not there. We also have an 8 year old who is just fine so I know it can't be the discipline for us as well. My son is already 6 years old so I hope it is not too late. I first asked his doctor about what was going on when he was 3 and was told "boys will be boys" we have since found a new doctor. I will keep you posted in the future, thanks.

Robin - posted on 12/22/2008

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I am new to this site, but I wanted to comment to give you another opinion (which doesn't really differ from Jennifer.) I would also suggest having him tested for SPD. The one bit of advice that I would give you is to listen to your heart. As a mom we have this strong sense of what's wrong/right with our kids. If I didn't constantly say to the many doctors..."but something's missing" We would not be anywhere today." My son just turned 4 last month & was Dx with SPD at 3 yrs. This was after spending a year at peds, behavorial theorpists, phychologists. It was crazy! At 20 months he started getting really mean to peers & care givers (even mom & dad.) Just like you his hugs were hurtful, but than it went to biting, hitting, pinching, scratching, and finally choking. People kept telling me that I wasn't disciplining right. Even though my older son was perfect. I kept saying, "I do exactly what you tell me to do & I get this blank stare." He was not there, he was in another world until I shout or shake him to. Finally, the phychologist sugested Occupational Theropy & this has totally been a God send. After one year of weekly visits we can totally see a change. Even the Ped. who doesn't really beleive in SPD said she can see a total difference. My son gets us now. Although he's not perfect, it's not so hard to love him (I hate admitting that.) Please let me know what you have decided to do. It's so hard in the beginning, but again, I totally agree with Jennifer.

Jennifer Miller - posted on 12/15/2008

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Hi and welcome! Yes, that is one of the best books out there! Mine is highlighted to death :) My son was tested for Autism as well, but they said it was SPD. A lot of kids with Autism have SPD, so it can look similar. He sounds like it to me. I would definately have him tested. How old is he? We went through the county and we are also getting tested at UVA's Kluge Center. They can better pinpoint: gross motor, speech delay, sensory intergration, etc. Please don't wait! My sister never tested my oldest nephew and its been a hard road for him. Her youngest didn't get help until almost 5, they didn't know what to do at the time, she is still mad they couldn't figure out what to test him for, He was so frustrated and voilent, but after therapy got going, he changed. He still needs therapy in my book. But anyway, the sooner, the better.

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