Just an introduction

Robin - posted on 12/23/2008 ( 3 moms have responded )

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Hi, I'm a mom of 3 boys, my middle, Owen was Dx with SPD 13 months ago. He turned 4 last month & has been attending weekly O.T. sessions for over a year now. I just felt the need to reach out to all of you that have recently posted (although I think this group was just started a month ago.) I have been a member for a couple of days & I already feel at home with you girls. I can't beleive that there are so many mom's out there just like me who have children with this non-obvious (at times) disorder. It almost makes me cry when I read that someone else's kids HATES having his teeth brushed, or doesn't sleep through the night, or will NEVER sit still, or has that "not there stare" and the biggest one of all is that he just won't look at you. Sure he'll glance your way, but he won't stare at you while you talk to him, and if he does he has no idea what you have just said. Just tonight I realized why my middle son was not interested in learning sign as a baby. I have taught my other two to sign starting at 7 mo. in order to communicate until they could talk. Owen did not have speech delay so I quickly gave up signing with him when he began talking. I now know WHY he wasn't signing...he was't looking at me long enough to see what I was signing. It's the little things that you girls talk about that I have forgotten about that helps me realize that Owen has come so far in a year. To the mom's of children who have just started O.T. hang in there & give it all you can. It probably won't be a quick process, in fact I can guarantee that it's a slow process, but it will come. And to some mom's that were commenting that they hated when the O.T. changes things (like trying brushing or compression) when the kids doesn't like it, I will tell you it sucks but it's the only way for them to figure your child out. Every single child with SPD is different. For example, Owen does not like brushing at all, no way. But what we have found that has worked is a deep pressure vest, a weighted blanket that he sleeps with, and a hammock-type swing in his room. Out of all the things that the O.T. tried, these calm him the best. He doesn't have issues with food texture or clothes, but I know there are little things that I'm missing that are part of his SPD. And this group is helping be realize them. I really feel like this group was a God send, and my son will benefit from every post made. Even if it doesn't pertain to him now, things could change. So I would like to pose a question to whom ever wants to share...how long has your child/children been Dx, what's their age, and how long/often have they been going to O.T?

3 Comments

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Jennifer Miller - posted on 01/31/2009

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Hey there Jennifer! Glad you are now in the group! The more I read, the more I am finding that this is a genetic thing. And unlike what people say, they don't "grow out of it". Its so complicated!!! :) Please let me know how its going!

Jennifer - posted on 01/30/2009

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I am new to this group also.  My daughter was just recently Dx (about two weeks ago).  She is 3 1/2 y/o and has weekly therapy sessions that we also started about two weeks ago.  I have been reading every resource available to find out more about this disorder.  I didn't even know what it was when my ped mentioned she might have it.  I have read The Out of Sync Child and Sensory Integration and the Child to help me better understand what Ashlyn is going through.  I have also bookmarked the site www.sensory-processing-disorder.com.  But only after reading about this have I discovered that Ashlyn has had this since birth and that is why I could not 'control' her.  She has hyposensitivity to most things but then has hyper and hypo to others.  Hopefully, with more therapy, we will find more ways to help her.  I am also very glad there is this group where we can all relate and learn from each other's experiences.

Jennifer Miller - posted on 01/30/2009

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Welcome! Welcome! I am so glad you are here! I am sorry for not writing sooner but with sick kids... well you know ;) I am so glad you found a "home" here. Thank you for your encouraging words... that is what we are all here for! My kids are the same way. My kids have severe eating issues and its driving me CRAZY!! My daughter (5) has not been offically called SPD, but with 2 hour fights over the inside of socks, refusal of any pants other than 100% cotton stretch pants, absolutely cold food, inability to calm herself over little things, etc etc I KNOW. My son (3) has been since about 10 months. He just stopped talking. He wouldn't look at anyone. He had to be by himself, he'd bite, an air nail gun would go off 2 feet from him and he wouldn't blink, he couldn't go down stairs, etc etc. We had him tested and he as apraxia, severe speech delay, motor planning issues, etc etc. We are going to University of Virginia's Kluge Center for a full blown evaluation. These are the people who write the books, our pediatrican told us. He had OT for over a year before being transferred to the school system. They only do ST, so its frustrating. And dealing with insurance is a nightmare. They say he'll get OT/ST if he had a stroke! So hopefully UVA will help us get the extra therapy he needs. Anyway... Thank you so much for joining and you have been an inspiration to me already!!

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