New SPD Mommy

Whitney - posted on 06/14/2013 ( 2 moms have responded )

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Hello Ladies! I am very new to this group and up to this point I have not posted anything although I do a lot of reading through conversations and getting a feel for how this all works. To start I should say that my son, who will be 3 in August, was diagnosed with SPD and Dyspraxia on May 28th. He has been receiving speech therapy for about 8 months now for his speech delay and just this week we have two Occupational therapy evaluations and will be working with two Occ. Therapist as of next week. We will also be doing PCIT (Parent-Child Interaction Therapy) therapy which I have never heard of until recently and if anyone has done this I would love to hear how it went for you and and your child and if there was any success. I new by the time my son was a year old that there was something different about him. As he got a little older those things that seemed to make him very smart and special turned out to be the things that made our every day lives a big challenge. My son is a major sensory seeker to a dangerous degree. He gets hurt a lot and we have a very hard time calming him down. We have a lot of problems with aggressive behavior which is our biggest concern right now because we also have a baby girl that just turned one last week and he takes things out on her when he gets a chance. He throws things up in the air constantly just to watch them fall and he throws anything he can get his hands on when he is angry. I actually had to pick him up today from Mother's Day Out because he was throwing chairs across the room and hitting his teachers. My son is a visual/vestibular seeker and auditory avoider. What I have learned thus far is that he needs visual cues in order to process request and transitions properly. I have read The Out-of-Sync Child, Raising a Sensory Smart Child and the The Out-of-Sync Child Has Fun and while these books are wonderful I just feel so bombarded with information and suggestions and feel that I still have no idea where to begin. We know that physical pressure is calming to him (Hugs, rolling up in a blanket). Any kind of swinging, spinning or jumping activity seems to help him calm down as well as energy exerting activities like pushing, pulling and lifting heavy objects. I know nothing so far about creating a sensory diet although I have heard of them and I am very interested in creating one for my little man. This has been the most stressful year for myself and my husband and we are still trying to come to terms with our sons diagnoses. We are 100% ready to anything we can for him its just a matter of where to begin. Final question.... Does anyone else have a child with SPD and Dyspraxia? I have been a pediatric nurse for several year and I had never heard of Dyspraxia until my son was diagnosed with it. Apparently it is not related to his speech as he is beginning to say tons of words and finally form 3-4 word sentences. Any info on this will be much appreciated! Actually, any information about any of this will be appreciated. Please share experiences, therapies you have tried, what has worked and what has not, success stories and anything else you can think of. Thank everyone so much in advance and I apologize for the short novel.

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Brenda - posted on 10/22/2013

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Hi there I am also a new member and have only just received a diagnosis if SPd for my three year old son. He is a sensory seeker and if I were to write a post about him it would mirror what you just posted above . We always knew that something was not right with his behavior , he started constant crying when we brought him home from hospital and I basically held him(tight) all day everyday to soothe him. His development was delayed and the reason we sought help was for speech initially and over the course if evaluation we were told he has SPD . I had never heard of it before and like you am reading everything in sight but still feel very alone and lost when it comes to the sensory diet . He is a wonderful bright boy who we love dearly but he his behavior is exhausting and I really feel as though I can't cope anymore. He appears totally out of control when we leave the house, we can never let him walk because he runs away to an extent that is dangerous . He just has to touch everyone and everything in sight . He echoes warnings like don't run away or you will get lost with I need get lost or you will fall and get hurt with I need get hurt etc . I have pulled away from play groups and library activities because I just can't cope with the judgmental stares or the way people pull their kids away from him . We are in the middle of an evaluation for a place in public preschool but I am really worried that he will not be offered one as they literally spent 30 mins in a room with him and when he has all eyes on him he is wonderful. It really will be our saving grace as we all need help right now.

Kellie - posted on 07/03/2013

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Hi it sounds like a lot is goin on for u. I have a 6 yr old vestibular SPD son with developmental dyspraxia. I'm still unclear if they tie intogether or not.
My son has been really improving over the last 12mnts and starting school. I to had never heard of dyspraxia. My son cant sit still, likes to jump on couches, pain has been an issue as he seems to process it differently. He would scream for a tiny bump and I couldn't calm him down but as he gets older he seems to be able to settle quicker.
His dtspraxia is more fine motors kills. He has a special Cushion at school, couldn't write a letter at the beginning of the year but can write words now we are focusing on stretching his hands.
I guess I'm just letting you no OT has been fantastic for him and your son being diagnosed younger than mine hopefully you can put steps in place before he goes to school.
I am finding my sin to be so intelligent. If he could only get thing done on paper things would be easy for him. All the docs have said basically his brain and body aren't in sync.
I do find the extra exercises taking there tole. He has had enough and I get upset. It's really hard but just wanted to let u know the things we are doing are working and there is a big improvement. All the docs tell me kids like ours just have to get through school and they will find what they are good at and you want know anything is wrong with them.
Good luck

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