New to the Group

Sarah - posted on 01/18/2009 ( 15 moms have responded )

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Hi Everyone,

We are new to the group. I have a 7 year old Christopher, and almost 5 year old Hunter. Christopher was a 61/2 week preemie so we expected a few issue, but I had no idea what sensory issues were until he was 3. He was alos diagnosed with high functioining autism in August. Hunter was born "with in normal time frame" as the doctors told me. He is our complicated very involved one. He has Cerebel Palsy, seizures, lung issues and on and on. Christopher is one of the worst sensory clients our therapist has ever seen. Although he has made excellent progress! Hunter has almost the exact opposite sensory issues that his brother has. So when we have a handel on one, the other one is out of controll!

With everything that we have had to deal with and learn in the past few years I have become a resource cordinator of sorts for many differant people, including the social workers that are suppose to be helping us! I am always excited to learn new things, meet new people and share ideas. I am excited to be part of a group were other parents understand why my kid will not wear socks let alone get a snow suite on. Why he can't stand bouncy houses but loves the trampoline. All the fun things that come with sensory issues!

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Jennifer Miller - posted on 01/30/2009

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Wow. That sounds like you have a massive load to deal with! I am so excited you found the group! My daughter will fight me on socks too! I think it took 2 hours once to get socks on.. I had to fight her on it since it was 32 degrees outside :) I am personally so excited to hear from you, you're experiences and learning can help so many! I hope we can be an encouragement to you! I love your energetic attitude, hang in there!

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Hello! It sounds like you really have your hands full! I'm impressed with how you've been able to learn so much & help others especially when it sounds like you are learning & need help yourself! I have a 5 yr old with tactile defensiveness... and luckily the sensory issues seems to have skipped by 2 yr old... i don't know how you manage with both! do you have local support for you?

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Sarah - posted on 02/18/2009

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Well I hope some of the things I have posted on here have been helpful, and the stories can make you smile! I have found that laughter and smiling as much as you can really helps. I wish you much luck with your little one. Sensory issues can be such a challenge in so many ways! It can also give so many comical moments!

Holly - posted on 02/18/2009

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OMG! Listening to your story makes me appreciate mine a bit more. I thought we had it rough with just one, but I couldn't imagine two, let alone, two with opposite sensory issues. You are inspirations and I love the tips that I have found thus far on here.

Sarah - posted on 02/13/2009

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If you have any extra energy, I will take it! Then let me know how you did it!!! I love my little men, but geesh, I am exhusted!

Shelly - posted on 02/13/2009

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Hey, i just wanted to say, i know what you mean. My two have opposite senory issues. i feel  like a ping pong ball or a see-saw one is up the other is down. it is draining i'll send you my energy....whats left of it :)

Sarah - posted on 02/02/2009

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Just remeber to keep the sandbox covered when you are not using it! LOTS of animals like to use them for litter boxes and nests like snakes and racoons. We haven't learned that the hard way, but a few friends have. I will have to get back on when we are not trying to get out the door and tell you more about the chair. I hope your kidos are getting better.

Jennifer Miller - posted on 02/02/2009

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The kids are both sick so I haven't had a chance to go... your chair sounds interesting... I'll have to check it out. Logan loves to twist his head back and forth so much I'm afraid he's going to pull a muscle or something! We built a sand box in the back yard and surprisingly, my daughter loves it, Logan likes it but he flips out when he gets anything on his hands. A friend tipped me off to baby powder to get the sand off, but he's not keen on that either :)

Sarah - posted on 01/31/2009

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Well today was rathing disapointing. I went there to get Christopher the ladder swing that they have had for a while. They didn't have anything. They still had what we call the cave swing, and a wicker half circle type swing, but that was it. I think I will have to get online. Oh well. We went to Target and found a disk swing instead! Oh, at Target (at least the one here) they have this small round game chair. It is perfect for a sensory kid that also needs to work on motor control! I can fit it in his cave swing and plug his disck man into it and he has the white noise or other sounds going through the chair, it is awesome! The chair is called Boompod. Hope you have better luck with your IKEA!

Jennifer Miller - posted on 01/31/2009

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Hey, thanks for the tip! We have an IKEA in Woodbridge VA so I'll try there. I am there way too much but its for the bookcases and office supplies and lamps... I could go on and on! :) Don't you love their great prices!!! What did you find on your trip today?

Sarah - posted on 01/31/2009

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Yeah the nipple story is one that I have to write in the baby book to I think! As I find more things I will certainly pass them along. If any of you guys have an IKEA near you, they are fabulous for getting sensory and other OT/PT things. All their toys were designed by OT/PT's from or in Sweeden so they are built for it! That is were we are on our way to this morning! It is WAY over half the cost of the thereapy catologs as well!

Jennifer Miller - posted on 01/30/2009

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That is a riot! As for sensory toys, I think we all should be stock in the companies, their sales must be through the roof! :) We bought a small toddler trampoline, bouncy horse, inch worm, on and on. He likes the old plastic bowl with pasta noodles the best. Leave it to kids.. ;) So glad you guys are here!

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Hahaha :) Thank you so much for the laugh today & the link to the catalog. I also have tons of sensory things throughout the house... even things in the kitchen like containers full of rice or beans that I let them play with.... I loved the comment about the nipples... That is something you will have to write down & give him a hard time about when he brings his girlfriend home to meet you!

Sarah - posted on 01/30/2009

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I had to post a funny that I was reminded of this morning. Christopher ran up to me one morning while I was washing dishes or doing something with a bottle for Hunter. He looked up at me and said, "Mom, your nipples are old, old, old." . It took me almost a month to realize he was talking about the bottle nipples! Gotta love kids!

Sarah - posted on 01/30/2009

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My knowledge has come out of me needing to control things to an extent so I am glade the controll issues paid off somewere! I really do love learning how to help my kids and then share with others. Hunter got a ball pit for Christmas. Instead of going through a therapy catolog I had my aunt go to http://www.cftoys.com/ they have free shipping and while it did not come with a ton of balls it was enough. Simple things like that have turned out house into a therapy center. I guess that is why my friends bring their kids to my house! I know that there are sensory groups in Seattle, I just have not gone to them yet. With all of Hunter's medical issues it had been hard to maitain going to all the groups, which is partly why I was so excited to find this group! Even when we are in teh PICU or just on the medical floor I still have my computer! I am looking forward to sharing more and learning more!

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