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April - posted on 05/20/2009 ( 3 moms have responded )

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Hello, my name is April. We have a 5 year old son that was diagnosed with SPD and ADHD just before he turned 5. It has definitely been a learning experience and we seem to learn new things about it everyday. I hope to be able to share and also gain valuable information on this forum. We struggle with the not wanting to sleep, tantrums, freaks out with haircuts and fingernail trimming, and also some developmental delays. Brushing really helps a lot with Nikolai and the swinging. We are still in the stages of finding what will and will not work for him. Look forward to talking to you all.

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Jennifer - posted on 05/27/2009

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My son was officially diagnosed just after he turned five, but I knew months before he had it. I am blessed to have two OT's as friends so they helped me until I was able to get an OT for Austin. In the past year Austin has started OT, allergy testing and shots, tonsillectomy, jaw work (expander for three months), change in diet (gluten free and casein reduced), and now speech therapy. This past year has been a whirlwind of activity, but I wouldn't have changed it for the world, because now I see on the outside the beautiful little boy I saw trapped on the inside. We still have our meltdowns, issues, delays, but we have come so far. Keep trucking on. Austin liked the brushing as well, but has slowly gotten away from it. All of this would not have been possible with God intervening and directing the path for Austin. You know your child best just trust your instincts. Look for all the information you can get your hands on. I like the book Healing the New Childhood Epidemics by Dr. Kenneth Bock also should be available at your local library.

Shantel - posted on 05/24/2009

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Another awesome book is The Sensational Child by Lucy Jane Miller. I have also attended a Conscious Discipline workshop. Check out the web site at http://www.consciousdiscipline.com. I have a two year old grandson that I am raising who has SPD. One thing that works well with Shon is the STAR concept. Stop, take a breath and relax. I have taught him to take deep breaths when he is frustrated and upset. I also use the I Love You Rituals at night along with a weighted blanket which seems to be very calming for him. I have a few more articles that I will look up and forward to you.

Deborah - posted on 05/23/2009

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Take a look at the book called "The Out of Sync Child" by Carol Stock Kranowitz, M.A. Very informative. You can probably get it at your local library for a first read and then decide if you want to buy it. It is a great reference guide. My son was diagnosed at the age of two and he will be six this coming September. He has had OT and SLP for these past almost four years now and even with the therapy he still can have the same problems. But, he has improved dramatically with the sessions he has had. He has gone from severe developmental delays and in a special needs class for three years and will be starting in a regular classroom this next upcoming school year. I have never medicated my son. It takes much patience, a lot of creativity and a lot of instinct as well. It also takes being firm and not giving in when they want something. If you say not to do something, make certain they know not to do it again. If they do, keep your word. Redirecting them helps as well. I so wish everyone who had a child with this disorder had the opportunities my son has had with the Bartow County School System. He would never have made it where he is now if the school system had not taken him in on his third birthday and immediately started therapy regularly with him.

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