No Diagnosis yet but hopeful!

Sarah - posted on 08/11/2009 ( 6 moms have responded )

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Hi! I am new to posting. I have 2 children, 2 and 6. When my son was 2 we had talked to behavior specialist who said he had some red flags for autism. But I have really felt like that wasn't the answer. We have just kind of dealt with his acting out. Until he was in kindergarten last year and was kicked out of 2 schools for his behavior. The 2nd school had a psychologist who told me he doesn't participate in activities and can't transition activities very well because he doesn't want to. This really hurt me because I know he can't handle switching activities when something isn't finished. But they did get him into a different school system and to a wonderful teacher. They listened to the problems he has and told me "oh that is a sensory problem" for almost everything we told them. I found the name of this disorder in a redbook magazine and found my way to a website online. I borrowed The Out-of-sync Child from my local library. And wow it explained almost everything he has done since he was born. His school has given me a number for Iowa city to "get his big brain looked at". I am really hoping I have found the answer. He is so smart but he can't make friends very well and I don't want "he just doesn't listen" to follow him through school.

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[deleted account]

Almost forgot...I also went on line and ordered lolipops and gummy bears that are dye free from Surf Sweets ( I found other sites too). I keep the candy in the house as a special treat from time to time. Also when they go to a birthday party or some place where they get candy...when they come home they have to give the candy to me, we get rid of it and give them candy that is safe for them.

[deleted account]

I have a younger daughter too and although she has no problems we have changed her diet. It's easier for you because you don't have to worry about your son getting something to eat he shouldn't have and you don't have to worry about a fight starting because your daughter gets something your son can't have. It has worked out well for us and the dyes in the food are actually bad for everyone so it's only helping by taking them away. There are a lot of foods that contain the dyes but if you look at all the labels you can find food that does not contain them and that your kids will still eat. It's a lot of work but once you get used to it you know what foods you can buy when you go to the store. Good luck!

Sarah - posted on 08/13/2009

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thank you I would appreciate that! Maybe a change in diet would help both of my kids, my daughter has some similar problems to her brother. I am hoping if we get this figured out now, she won't go through the same struggles.

[deleted account]

The name of the dye free diet is called the Feingold diet if you would like to look it up and read about it....it's really scary the stuff that they are allowed to put into our food. The dyes in the food are actually toxic. Don't get me wrong, my daughter still has a lot of trouble with her behavior but approx. 3 days after I started it at the end of June I started to see a defference in her behavior. Now instead of throwing an hour and a half violent tantrum her tantrum will last about a half hour and its just her screaming and calling people names. I just feel that with a child that has behavior this bad anything that helps is well worth it. Let me know if you decide to try it or if you need any help in what to look for on food labels. There are actually foods that you would be shocked to find out they contain artificial dyes.

Sarah - posted on 08/12/2009

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Thanks for sharing that! I didn't realize about the food. I will have to check that out! And check out the 1-2-3 magic!! I wish you and your daughter the best of luck too!

[deleted account]

My daughter will be 8 at the end of the month and we have been having all kinds of testing done since she was 2. She has been diagnosed with ADHD and a form of autism...nothing the doctors have done has helped including medicine. She was just thrown out of her school also and will be going to a new school in Sept. where they are trained to handle behavioral problems. I was recently told by a friend that she may have SPD and told to get her to an occuaptional therapist. I had never even heard of this disorder before but I have tried everything and will not give up on my angel. She was diagnosed three weeks ago with this disorder. The other things she was diagnosed with fit a couple of her symptoms where this disorder covers everything! The therapist is going to try to help us to figure out what her triggers are to avoid conflicts and her 1-2 hour violent tantrums. She had us get the 1-2-3 Magic program to learn how to discipline her (haven't started yet..just got in mail). We also were told to take all foods away from her containing artificial coloring and it has made a difference in her behavior. Just like your child, my daughter is very smart and can be the sweetest person but because of her problems she is failing school and can not make friends. I wish you the best of luck. This has to be the hardest thing I have ever gone through in my life...all I want is to see my child happy one day!

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