Other moms needed for support

Jodi - posted on 01/18/2010 ( 11 moms have responded )

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Hey all. I'm so glad I found this site. My son is 6 and was diagnosed last year in kindergarten with SPD. He's in first grade now and having a tough time of it. I'm trying to learn everything I can about his issues to help him learn to overcome them, but it's tough! DH is refusing to accept that our family isn't the same anymore, and I have no one in my life to talk to about all this.

Really hoping to meet some other moms here to share stories and resources with and maybe a shoulder to cry on once in a while.

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Cedar - posted on 03/04/2010

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Hi, Like all other moms on this site Im also so happy to talk with parents that are going throw the same thing as me with my little girl. There are so many books out there on SPD I would get them and read them they are so helpful. Also Talk to your doctor about OT for you child. I found CHILD FIND throw the county that I live in. They will test your child for free and find a program for you child that will help. My Lanie is doing really good better but we still have the metldowns and her eating is so picky. To help with Fine Mortor Skills we set down with lanie and have her cut paper. and we also have heavy lap weight that was made for her when she is sitting in circle time with day care and pre school. This helps her focus Also we are have her help us everying like cleaning table sweeping the floor pushing any thing kind of heavy this helps her out a lot But the best thing kids with SPD is OT this helps them learn to cope with there SPD

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Tami - posted on 08/21/2010

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My Granddaughter was diagnosed with SPD at around age 2, and she had most of the difficulties that you all listed.

During Kindergarten testing they also gave her a diagnosis of Aspergers (moderate) but that was also suspected when she was 2, and we were also told that she has NLD (Non Verbal Learning Disorder), now that one we had to look up and do research on!

Ot therapy for about 3 yrs did wonders for her! She did not tolerate the brushing well, but anything weighted helped her, and so did her noise cancelling headphones. I saw some for only $10 recently in a catalog. She also needed chew toys/therapy tools.

In OT they helped her with her fine motor skills and with developmental delays. She still can't ride a bike, and swinging on a swing is also still difficult for her. They worked on some of her food aversions with her. And they helped us set up a cool down area in her bedroom.

I'm also here for anyone that needs me. She has lived with me since she was an infant and I am one of caretakers so I have been with her through all of this.

Good luck to all of you! It does get better. She has a lot less meltdowns and she is less frustrated after the tools we all learned in OT. My 3 yr old Grandson also seems to have SPD and Aspergers. He will be the next one in our family to be diagnosed and to go through OT.

Angela - posted on 08/20/2010

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I know how it is. We are a small group of people or so it seems anyway.. It definitely feels lonely. Unless you are actively going thru it either people think you are a bad mom or that you are just plan crazy.. I mean who can you talk to about your struggles with your child unless they are going through it.

Oh yeah had another melt down this morning- socks rubbed her toes the wrong way... blah, blah.. yeah most other parents on the block don't go thru that...

Angie Avers

Lisa - posted on 08/20/2010

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WOW I am so going thur the same thing I am so lost My son had a autism spectrum disorder evaltion done and he does not have autism but he does Spd/adhd/anxiety/learning issues so I am thankful for the website. so if you want to talk anytime. dont get me started on the school stuff lol

hang in there

Lisa

Angela - posted on 08/19/2010

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Hello,

My daughter was diagnosed around the the same age... It does get easier. As you son gets a little older, you will find that he will sorta learn to deal with the world that is rubbing him the wrong way soo to speak. and my daughter has ADHD and we were testing too see what else is going on

Listen, I completely understand. Natalie used to kick scream, cry, have melt downs.. I have stories to tell ya about the kid that I thought was crazy or that I was crazy. OT was a blessing.. SPD is very real! Just hang in there either you DH will come around or he won't.. You are the best adovacate for your child right now until he can learn to self regulate himself.

Hang in there mom! FEEL FREE TO EMAIL ME ANYTIME!

Been there,

angela avers

Lesley - posted on 03/01/2010

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fortunately for me my husband is supportive, but we are having a hard time getting help from the school and my son's therapist in giving my 7 year old support. We had the diagnosis over 3 years ago but the school refuses to get him the resources he needs because he does not have any other issues such as autism. I would really like to find some people who can just listen to me vent about the day to day issues and how to help him at school.

Megan - posted on 02/28/2010

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ohhh totally undersatnd. My husband is having trouble understanding it as well. men like to fix things and this can't be automatically fixed. He is not sure of the brushing and some of the funny therapy we are doing. These sights are great. Find a few cheerleaders that will hear you out and listen.

Jodi - posted on 02/07/2010

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Thanks so much for the responses and encouragement! I've actually got good news--I found a new pediatrician that works with SPD kids, and we are now so much closer to getting a diagnosis that can get him help in school :D I've also met some great moms who run a parent-support group in my area, and they are affiliated with the SPD Foundation. It's been such a Blessing and a relief to finally feel like we are going forward and getting my son the help he so needs so much! Thank you for all the support and please let me know if I can help with contacts or websites that I can send you to for more information. I'll do whatever I can to help other moms who need the support :)

Siobhan - posted on 02/06/2010

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Hey there Jodi (and Carla)
I completely are in the same boat! Sometimes dealing with an SPD kid, it just seems like there is no one else to talk with who will understand and not think you are a mom who is overprotective. I would love to share stories and find support in other moms who struggle with the same kinds of day-to-day struggles.

Carla - posted on 01/21/2010

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Same thing here! :) I was sooo excited when I found this site! When did you first notice that something wasn't quite right... or you son was more challenging than most children?

I'd love to share stories..

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