SPD and Rumination Syndrome

Kari - posted on 10/14/2012 ( 5 moms have responded )

5

0

0

My 5 yr old daughter was recently diagnosed with Rumination Syndrome and SPD. I was wondering if anyone else has a child with both. (Like is this something that usually goes hand in hand together?!) Rumination Syndrome is unforced regurgitation/vomiting of food. That is what we originally went to the doctor for, because we thought FOR SURE she had a GI problem (GERD, Reflux). After lots of testing, she was diagnosed with the Rumination Syndrome and was sent for an evaluation for SPD. We will be starting to meet with our speech therapist, OT, and psychologist within the next week (thanks to insurance hang ups). Does anyone else have any issues like this? Or other feeding issues? Thaks

MOST HELPFUL POSTS

Julie - posted on 07/21/2014

1

0

0

Did any of you get to the bottom of the rumination and spd solutions? My son has been ruminating since he was a baby and is now almost 8. They want to do a test for gastroparysis. It is called a gastric empty scan. Have any of your children had to do this test and how was is? Also, I do find that gum does help a little. Did you find drs. that have been amazing or given any suggestions/meds that help? Is the breathing therapy helpful cause it sounds silly? Please help and give any suggestions or thoughts.

5 Comments

View replies by

NICALA - posted on 05/08/2013

1

0

0

Hi Ladies!
My now 6 year old daughter was diagnosed with Rumination Syndrome 2 years ago. Her pediatrician didn't take it too seriously until I insisted we look into it further. After seeing a ped. gastro., she had an Upper GI (which came back normal) as well as an endoscopy, at which point she had a 48 hour recorder left inside. The recorder showed she only had contents come up during the day & nothing while asleep, so the gastro. diagnosed her Rumination. He said that she could do a breathing type therapy, but not until she was much older, maybe 10. Since then she has taken prilosec daily to keep the acid down and protect her teeth, & I keep her primarily gluetin, wheat, & dairy free. (I notice much smaller amounts regurgitated).

She has always been very social & it never has bothered her until recently. (Like Asia, she has small amounts come up all day). Recently her teacher noticed her chewing on something and when she asked her about it, my daughter burst into tears. We went back to the pediatrican this week--she was Rx erythromicin before diagnosis and it seemed to keep her from getting anything up, but at the time she would just try harder. I thought maybe now that she is older we could try erythromycin again. We have just switched to a female ped. at the same practice. After hearing her background, she suggested a psychologist. (Although she did Rx the erythromycin as well) My daughter does tend to worry. But could this be necessary or linked? She has been doing this since at least 3. What could she have had anxiety about at 3??

Kari, I find your daughter's diagnosis of SPD interesting. My daughter has not been diagnosed with this, but she has done the whole arm flapping thing since infancy. She does this whenever she is very excited and anticipating something, & has mostly outgrown it, but I do occasionally see her do it on the soccer field or in class. Do you find the OT to help???

Thanks so much!
Nicala

Tracey - posted on 01/10/2013

2

0

1

Thanks for replying Kari.

I am happy to hear that your daughter is responding to therapy.

When Asia started school she was very very shy, reserved and standoffish to say the least.. LOL.. She does stress a lot and she can be very sensitive and emotional at times. This all came as a shock to me, because she is a totally different child at home. She has gotten better, but she's still a bit shy and only talks to a few kids on her class. She doesn't speak up in a large group of kids, but she does much better is smaller groups and around adults.

My daughter's rumination (she hasn't been diagnosis-ed with it) is a little different from your daughter's. Asia will throw up a small amount of food or liquid ALL day, but she seem to keep it contained within her mouth. If you're not aware of what's happening, you wouldn't be able to tell she's re-chewing and swallowing food. I have observed her do this all day at two or more times an hour. I even started questioning my daughter to find out if this was something she was doing intentionally and she keeps saying, "it just comes up". I was hoping it would improve during the Xmas break, but it didn't.

I took my daughter in for her follow up check up today and they're going to schedule a the Barium drink test. I'm hoping to have some answers soon.

How is your daughter doing in school after the break?

Kari - posted on 01/02/2013

5

0

0

Hi Tracey!
I think within a 6 month period Lanee was one 15 different meds on and off. We did the Barium drink tests, stomach emptying, Upper GI's, Lower GI's and all sorts of different things. Lanee's Rumination became REALLY bad right before and during the first quarter of kindergarten. Right now her therapy is actually working really well for her. She had an evaluation done at her psychologists office the second week that she was there and they Dx her with generalized anxiety disorder. They think that all 3 things are basically the reason for it. She's so nervous about things that it causes her to stress so much that she ruminates and then of course the extra sensory issues just make it worse. Once she started school, the kids were making fun of her about throwing up and saying that she smelled bad. The first 3 months were HORRIBLE! But now that everything is more routine, it has cut down from 18+ times a week to maybe 5. I'm worried about sending her back after Christmas break bc Im afraid it will regress back to square one.
Unfortunately we live in a very small town and we are having a really hard time finding a speech therapist that teaches diaphragmatic breathing (so she can help control the stomach muscles better to keep food down) We are going to be going back up to Chicago (where she was 1st diagnosed) later this month. We are hoping that it will stop it completely. When she was diagnosed, our Doctor told us that this is basically just something that is "manageable, not curable" so hopefully we will find a way to manage it better.

Tracey - posted on 01/01/2013

2

0

1

Hi Kari, My 5 year old daughter is experiencing rumination syndrome symptoms. We went to her primary doctor and the first time they did think anything of it. I took her back because it had been 3 months of her throwing up her food and rechewing it. The second visit they thought a sinus infection was irritating her stomach and this was causing her to regurgitate her food. So they prescribed antibiotics and a medication for reflux to see it that solves the problem and it didn't.

We're going in for a follow up visit next week. So it will be interesting to hear what the next course of treatment will be. She was a perfectly healthy child until 5 months ago. She started kindergarten and had a hard time adjusting. Maybe that's what triggered it. I don't know, but I want answers

My question to you is, has there been any progress made with therapy?


Thanks,
Tracey

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms