The need for Diagnoses

Venna - posted on 07/01/2011 ( 14 moms have responded )

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Well last night or actually this morning my husband and I got into a little spat at 2 in the morning because he is really wanting our son to get a diagnoses, I have come to terms with the whole we are treating the symptoms as they come up really what is a diagnoses but a label you know. Anyway, and he got really agitated about it and he told me that he just wants to know what to look into because he is one of the people that like to look stuff up. So he is really going crazy trying to pin point what he thinks that it might be. Thank god for you guys, he is assuming the worst but we are just trying to work with is sensory processing like usual. Any suggestions on how I can bring this up to him or combat his need for a diagnoses just yet.

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Fiona - posted on 07/05/2011

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Hi Venna, I totally get the "why do we have to label our child" thinking. I have 2 boys with Asperger and for my oldest, I was totally against getting a label (there were a lot of reasons for this) and only succumbed (end of grade 4) when his behaviour at school began to impact on his learning. With our youngest, we got him diagnosed, (beginning of grade 1), when the first lot of symptoms started showing.



The difference the early diagnosis has made can't be described. Whereas my oldest has had to unlearn poor coping strategies (think debating why they don't work in the "real" world, explaining that other kids his age don't behave in this manner and convincing him that a change is required, then repeating the process each time the behaviour varies slightly) and have him relearn appropriate ones (again debating why this strategy will work, getting him to accept that it does and that is will take more than one try before the strategy will work - not something Aspie kids do well), my youngest has had the intervention and support to learn the appropriate behaviours and people (teacher aides and specialists) to faciliate changes where appropriate.



The difference the label and therefore the subsequent help received for their schooling life and treatment options is poles apart.



Thing of the label as no more than "a ticket" needed to get the help and support that a child will need throughout their life. As Amy said, the label is already part of the child, much like an arm or leg.



Not sure where you live but in Oz the Pediatrician or Psycharatrist are the only ones who can diagnose (at least for school purposes). Whereas the therapists provide the help needed. This may be the reason why the therapists are hesitant to "diagnose".



Hope this helps.

Jane - posted on 07/15/2011

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A diagnosis only becomes a label if you use it as one. Properly speaking, a diagnosis is a tool that helps parents and doctors predict problems before they happen and so are able to lessen the impact through treatment.

Jane - posted on 07/01/2011

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What a diagnosis can provide is a feeling of control. Having a diagnosis means that there is some ability to predict the future. Your husband may be feeling helpless by not being able to know what additional problems might show up. He may feel that having a diagnosis will help him plan for the future.



Is there any reason why a diagnosis is not possible now? Even if the diagnosis needs to be changed in the future, having one could be a way for him to plan and thus feel in more control.



And reading the "Out of Sync Child" is also a good suggestion.

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Amy - posted on 07/15/2011

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We finally got a diagnosis for our 2 children and 1 of which has SPD. Labeling is in my mind the perspective of one person. I have 3 children all with speech disorders and 2 with other issues along side. To me these are my "average children" and not labeled children. Getting a diagnosis helps parents and therapist to help the child in need to adjust to his/her sourroundings. I'm not pointing fingers to whom labels or doesn't label, this is just my point of view on things. Best of luck.

Ashley - posted on 07/10/2011

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I believe, and I may be wrong, but I was told that an OT has to do the actual "clinical label" in the case of SPD. It's not a medical diagnosis, but a label.

Venna - posted on 07/10/2011

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yeah that makes sense I am going to take all of my evals and what not to his next appointment to his pediatrics appointment here in a few months and see if we can't get her to give us a diagnosis based on those because that is a lot of information.

Ashley - posted on 07/09/2011

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If you get a diagnosis it helps not only know exactly what he needs and also get funding for things like therapy through assistance foundations. My son has done really well with hippotherapy (horse therapy) and because we have his IEP, etc they give us a discounted rate. (we could get help through our county Developmental Pathways organization except they don't have enough money and he is not high on the list.) There are other things I'd like to try like music therapy (he loves music) etc. that we need help with the cost of and because we DO have a diagnosis we can look for that help. The stuff you do at home will probably not change, it's all just sensory diet stuff, but it may help you look into other therapies that might help.

Amy - posted on 07/08/2011

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Even a developmental specialist would help although that person would need evals and other notes to help out; psycologists, ot, st, pt, ards, etc.

Venna - posted on 07/06/2011

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Yeah they said that they are not aloud to diagnose him with anything but that there will come a time when he will need to be diagnosed and that will probably be soon here before he starts school and everything so that way he can get where he needs to get. The more the time goes on the more I can understand where he is coming from that is for sure. I live in California and it is the same where we live too about the diagnosis I think.

Venna - posted on 07/05/2011

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Thanks he is a bit young for any answers through school or anything but yeah I love the out of sync child. I wrote up a sensory diet for my son yesterday and I was so happy to have those books that is for sure. I do realize now that the need for wanting Zachery to have a diagnoses was because he wanted to have somewhere to go from there. That is pretty much all that it is. I guess while I was handling all the Ot and Pt and child developmental specialist he really didn't take any of this in and he really is just finally dealing with it inside. That is what it was all about, he is one of those types of people that like to obsess over things sometimes or he gets new hobbies and everything and where it is awesome when it has to do with the kids the next thing you know there are home made toys all over the house which is awesome and I do love it but it is something new for me as well. Prayer for acceptance for the way he is dealing with this internally. Everyone deals with it differently.

Amy - posted on 07/04/2011

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A diagnosis isn't a label its actually a part of your child. Although you take it as it comes, the more you know, the more control you have over understanding the outbrakes and trying to assist your child in school for the teachers, yourself and your child. My 6 yr old has SPD and if I knew this when she was much younger, my disaplinary actions perhaps would've been on a different level. I reveiwed her OT evales from several yrs ago, and although the therapists new of the issues, I wasn't informed much of what they knew, which in turn was quite a disappointment. Now with more information from the school therapist assistance of THE OUT OF SYNC CHILD books and new OT private therapist an at home remody for her has help tremendously. I know more now, than what I did know. You can get help perhaps through your school system in your decision. Best of luck.

Venna - posted on 07/02/2011

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Thanks everyone for helping me to see things through his point of view. We are reading the out of sync books they are full of good idea's also well the out of sync child has fun is full of good idea's and ways to help. I do agree there. I have also downloaded a few books on Autisim and it turns out that he has a lot of the area's needed to have a diagnosis. I am not sure why one is not possible I keep approaching our therapist and well they keep saying that they can give us a diagnosis because that is not what they do I guess they can't say anything if it happens to be wrong or something. But I am sure that they look at him and they have seen children before with the same symptoms as him. The only thing that they could tell me is that there will be a diagnosis in the future. I will probably talk to one of his ladies the ot and see if we can't get a name put on him. But we did have some good news today though in his gross motor skills, when we started he was ranging in a 5 months and now he is at 15 so that is awesome for sure that he has improved that much. Yeah. Thanks again you guys and I will let you know how everything goes. He was not feeling well today so he was not very interested in all these people in his space today.

√v^√v^√♥ - posted on 07/01/2011

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I think having a diagnoses helps and you should persue finding one. Before I was diagnosed, my parents didn't know what to do with me and even after I was diagnosed my parents barely understood. But it brought something to us, something concrete for once, something to research. So try not to be so hard on your hubby, his feelings are valid in wanting a diagnoses. However, once you find one, you are still faced with the 'what to do from here on out' scenario and therefore a diagnoses may not help much more if you are already working with your sons symptoms. So, I'd say you both are on the right track. Congrats on working with your son! But I do hope you agree to let your husband search for a name. Some people need this. I did. It helped me lots.

Schyla - posted on 07/01/2011

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give him the out of sync child to read! and you read it too it's so full of info and what to expect and what to do about it he'll feel so much better! as for the diagnoses If your seeing an OT the chances are he's already been diagnosed! the assessments will help but if you want help once little man is in school you'll want the diagnoses!

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