My baby will most likely be getting a trach within this week and...

Reina - posted on 08/23/2010 ( 1 mom has responded )




Hello everyone,
My son Matthew was born on April 14, 2010-weighing in at 1 pound 12 oz. He has beat so many odds that come with being nearly 4 months premature. However, his lungs are so damaged from needing a vent for most of his life so far, and then he had to have surgery on the Right diaphragm due to paralysis after another surgery for his PDA. Recently he was diagnosed and has been being treated for Pulmonary Hypertension, due to being pushed too fast when he wasn't ready to breathe more on his own. The doctors are going to take him off of the vent and put him on a nose oxygen mask (C-pap) and they will be so happy if he can tolerate this and keep his CO2 levels down. But, if he cannot, then they will give him a trach and connect a vent. If he doesn't need the vent, and requires a C-pap for a long time, which he will need support for a few years, he will still get a trach hooked up to oxygen. Has anyone here ever had a baby with a trach on a breathing machine temporarily? Long term? Can you PLEASE tell me about it. Me and my husband are first time parents.


Ashlee - posted on 08/24/2010




Hello, you both sound like amazing parents, it deffenitly isnt easy watching your child endure such as yours has, bless you and your family! You are in my thoughts and prayers, I will pray that Matthew doesnt need a trach at all,and recovers well!

My daughter has been on a vent with her trach temporarily when she first had the surgery but never in our home, it is very hard to adjust to a trach even without a vent but of coarse your child is worth the sacrifice and these children truly are blessings, their spirits are strong and full of light and love! I wouldnt change a thing!!
xoxo Ashlee

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