Moms of Young Kids w/ CF

This is a group specifically designed for mothers of young children with cystic fibrosis. Plenty of stuff to talk about even though these little ones aren't very old!


Thoughts on Pulse Ox for monitoring?

Hi everyone! I wanted to start a discussion regarding getting people's thoughts on use of pulse oximeters to monitor your child's CF. Do you currently use a pulse ox ever? Has...


Pseudomonas is here

My 2 1/2 year old tested for Pseudomonas and is now doing the Tobi treatments. I freaked out i am so scared for my daughter. I feel like the poor baby is always hooked up to a...


Kind of new to CF

Hi, My name is Desirée. I have a 1 yr old little girl named Lillian Jade. Lilly was diagnosed with CF when she was 1 month it came back in the pre-natal screening & i have been...


CF Blogs

Does anyone know of any good blogs for CFers and their families? I routinely check the, cfvoice, etc, but am curious about ones that are maybe written by...


4 months solids

Hi all I am breast feeding 3 1/2 month old Jasmine and giving her one forumla bottle a day with extra glucose (for weight gain), also giving her a start of 30ml forumla before 2...


8 month old has CF

Hi there. I am a 28 year old single mommy to four children age 12, 8, 3 and 8 months now :) My son Phoenix was diagnosed with CF when he was 4 weeks old. He was one of two...


Diagnosed at birth

Hi All I was advised to give creon to my newborn with expressed breast milk in a spoon. Which is quite a feat. Previously there was one mom who fed apple sauce with the creon....


Trying to help my son gain weight

Ok so my oldest son, Peyton, who is 20 months old is having a hard time gaining weight! And i really wouldn't appreciate some advice and different foods to feed him and snacks.....


My Daughter (please i need answers)

Hello my name is Cassy and I have 3 children! Today I found out that my daughter might have Cystic Fibrosis. She is getting tested on wednesday. She is almost 10months old and...


Hi. New to this group

My daughter, Emma, is 2 1/2. We found out she had CF at her 1 week old checkup. I am happy to talk to other moms who have young children with CF.


Enzymes clogging bottle

We give our daughter 2 cotazym enzyme pills in 1 ounce of formula before every feeding (we open the pills and put in the powder). We always have a major problem with the...


Phoenix is doing wonderful!!!!

My son is Phoenix who is now just over 21 months old. He is doing great. He has had three colds that have had to be given meds for but other then that is doing good. We took him...


More than one child with CF

I have a 4-year-old without CF, a 2-year-old with CF (both boys), and we are expecting a baby girl in March who has tested positive for CF. I'm looking for some feedback,...



My name is Mary. I have 2 children with CF. Elijah is 2 and Renae is 5 1/2 months. I just wanted to say hello and happy holidays to all of you!


Diagnosed at 7 months

What a hard thing having a CF child is huh? I don't know any of you women, yet I feel like I love you already. We have all shared in the devastation of having a child with an...