Diagnosed at 7 months

Kami - posted on 10/08/2009 ( 2 moms have responded )




What a hard thing having a CF child is huh? I don't know any of you women, yet I feel like I love you already. We have all shared in the devastation of having a child with an incurable disease. Through medicine, my 2 1/12 year old son has endured hospital stays, twice daily breathing treatments, a brain tumor scare, countless battles with insurance companies, tears and battles with getting treatment done, people staring as I "medicate" my child before each meal to become an energetic, crazy 2 year old. Quite an adventure isn't it? And yet, we do everything we can to keep these kiddos healthy despite the cost, time, emotional upset, and all the other crap that comes along with it because they are SO dang precious! Looking forward to sharing and receiving advice on dealing with this disease.


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Jennifer - posted on 10/17/2009




im sure we all share in your pain.... i know it doesnt make it any better but hopefully with all the support it will become easier to deal with emotionaly /mentally.. my name is jennifer and my son derek (1 yr old) was siagnosed at two weeks... its been trying and such a tribulation but i know all the love and support i get from my friends families and communities has been such a wonderful help... i am here if you need to chat or swap ideas or even high fat and calorie recipes!!! please dont hesitate to contact me...

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