21 month old with seizures

Ashlyn - posted on 03/01/2013 ( 2 moms have responded )

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Hello everyone,
I joined this site because I am in need of some help. My daughter Delani has epilepsy. She had her first seizure when she was 15 months old. After that we spent 6 months going to appt. after appt, then finally one showed up on a EEG and the DR was able to precribe her medicine for the seizures. I was thrilled! I thought that was the end of it, I thought that once my baby was put on medicine they would stop... But that was only the beginning of it. They started her out on Tegertol, told me that it was the oldest seizure med out there and that it has a high success rate.. Tegertol did not work for my baby. It did not stop the seizures, after the DR increased it to the maxium he could for her size. He then put her on Keppra. This medicine did not work for my baby either. :( it also made her very moody and aggrestive. She just was not herself. She is now on Trileptal. 3ML in the morning and 4ML in the evening. She is still having the seizures.. I am to the point now where I don't know what to do! They start her off at .5ML of every medicine and everytime she has one, I am suppose to call and let them know. Then they increase her med. Well, this morning when I called them to tell them about her last one last night, they said that they want to put her on .25ML of Klonopin!!!!! I know what that is and I do not want my baby on that. They told me it may make her a little drozy.. the other medicine she is on makes her sleepy as well, I don't know what it will be like once she is on both of the medicines. Kinda scary to think about...

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Ashlyn - posted on 03/05/2013

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Thanks for the reply. Maybe I should of been a little more clear. Delani is only on 3ML of trileptal in the AM and 4ML in the evening. She saw the DR yesterday and after a 30 minute EEG, he also put her on Lamictal for the seizures. He said that in some cases children require 2 different medicines to treat the epilpsy. While she was hooked up to the EEG machine, she had a spell. As he called it, irregular theta waves. She was laying beside me the entire time and I did not know that she was having one. I mean I was looking in her eyes the entire time. That really scares me. I am usually quick to notice when she is going into a seizure.

Maggie - posted on 03/03/2013

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I'm sorry to hear about all the troubles you and your baby have been having, but I think if you are unsure about what this doctor is saying maybe you should get a second opinion you have that right. It seems like a lot of meds for your baby to be on at such a young age but it might be necessary to keep her safe until she gets a little older.

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