Coarctation, VSD (Murmur), or other Heart Problems

Kristen - posted on 08/14/2009 ( 4 moms have responded )

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Did your little one have a heart defect? When did you find out about it? What procedures have been done to correct it? How's the baby now?



After my c-section my little girl stayed with me in the room for 36 hours. When a nurse was checking on her she noted that she was breathing fast and then my daughter was put her in the nicu for pulmonary hypertension. It was also discovered that she had a vsd. A echo showed that the vsd was not big and the drs believed that it would close up in just a few months. After five days on o2 my baby was allowed to go home and I was under the impression that she was all fixed . . . no more hypertension and her vsd was soo small the dr said not to worry about it.



When I took my daughter to her cardiologist for her one month check up I was surprised to find out that my daughter had to have heart surgery. "It’s not an emergency, but you need to go immediately to Atlanta to have a procedure" . . . .What famous last words. My daughter had a coarctation of her aorta. While my daughter was in the CICU I found one other mom who's baby boy (he was just days old) had the same surgery. She however found out while she was pregnant that her little one had a coarctation. OH and I don’t think I’ll ever forgive her dr for saying it was a heart “procedure”. He didn’t prepare me or my husband at all for what was about to come. It was completely heartbreaking to see my baby after surgery.



Are there any other moms out there who have experienced heart defects with their little ones?

4 Comments

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Kristen - posted on 08/14/2009

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Kristian, that's how they discovered hers. She just stopped eating for a day almost and then they noticed she was breathing heavier.



BuT all is well with my little girl. She's finally off her heart meds! YEAY!! Thank goodness she was great about taking her medicine. It smelled like sprite . . . she liked it.



Thanks for all the post. It helps me to think it wasn't my fault or something I did wrong through-out my pregnancy. I know the doctors say that it's not (99.9% of the time) however I couldn't help but feel that way.

Naomi - posted on 08/14/2009

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am sorry to hear that u had to go thru this. my daughter has a mumr in her heart she is now six still has it but no real promblems . she typical get put on asthma meds when she has a bad cold to help w breathing and to clear the cold. i also have two boys my olds had the murmr for a few months when it cleared. my other hasnt had a mumr at all he is now two. but my father who is native american has a heart promblem amoung other sickness. all i can say is never take a doc word for all of it look into and research all that you can ask questions and second opoins is all you can do to help your kids.

Jamie - posted on 08/14/2009

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My son has a murmer, they jsut found it last month and hes 2. It could be attributed to the fact he was sick at the time and allergies are really acting up. Its not to bad so its just being monitored. Most murmers either heal themselves or dont cause to many problems.

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Wow, that isnt cool at all. My son had a VSD and they never found it in him until he was 2 weeks old. I noticed that he was breathing fast and he stopped eating. So we dont have to have surgery but he is three now and we still see the cardiologist every 6 months to make sure it goes away. I cant imagine having to see my baby going threw surgery, it must have been really hard. I hope all is ok now.

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