Cystic Fibrosis

Tiffanie - posted on 05/01/2009 ( 3 moms have responded )

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Hey everyone. I learned today that one of my high school friends has a young child with this disease. On May 17th, my community is going to do a Walk for the Cure. If you would like to donate please click on the following link:http://www.cff.org/Great_Strides/dsp_Don...



I'm normally not one to put these things on webpages, becasue half the time I myself ignore them. But I guess since this is hitting so close to home for me, I feel the need to do everything in my power to help out my friend Katie. Even if someone donated $5, that would be good enough. I'm trying to spread the word. Being a young parent and a parent at all, I couldn't imagine what I do or what lengths I would go to if my child had this disease. Please help!

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Melissa - posted on 05/01/2009

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Yes it is hard espically since not many people even know about this disease and what these babies have to go threw every single day. Last week i called the paper cause i really think not enough people know about it and seeing as the month of May is CF month i would like to put Phoenix's story for everyone to see that not only him but tons of others go threw all of the meds, masks therapy and appointments. Yesterday the women called me back and came and did an interview and took photos of Phoenix!!!! We have to do all we can to get people to donate and know more about this disease that is why i want everyone to know about Phoenix's story!!!! Even put up flyers about it!!!! The more people know the better:) There will be a cure found and our babies will live a long healthy life:) Take care:)

Tiffanie - posted on 05/01/2009

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Congrats on raising that amount of money!! I know she is having a really rough time getting people to donate. I've been trying everything I can think of, asking family members, friends, putting up blogs about it. Anything to help. Your son in the picture is so adorable! It is so sad how these disease attack the most innocent of people, young children, my heart goes out to you and everyone else who has a child with CF. I have never been more dedicated to cause than this one!! I hope your son does well and I hope that we find a cure soon!!

Melissa - posted on 05/01/2009

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WONDERFUL!!! I aplause you that is very great for you to do. My son Phoenix has CF and was diagnosed at 4 weeks old. He is now turning 1 years old on the 9th and is doing great and gaining weight FINALLY!!! WE are also walking in the Great Strides walk at the end of May in Toronto at the Zoo. We have raised $710 so far our goal is 1000 but we will go way over that as for his 1st birthday instead of giving gifts the invites say to donate :) It would be the greatest gift of all to find a cure!!!!! Take care and thoughts are with your friend and her family!!

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