I have MTHFR-are there many mom's on here that do, too?

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Emily - posted on 05/28/2009

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Simply put, we don't make folic acid and much of what we take is rejected. It causes spontaneous clotting and we are a SUPER high stroke risk all the time. I have had five miscarriages (and an empty sac along with a full one with my current pregnancy) and my cousin had a stillbirth. That was just recently. When we went back through the family tree, it was shocking how many people have died from hemorrhaging while giving birth, not to mention strokes. We were genetically tested for this after my cousin's stillbirth-it's amazing how many of us had it. I was just wondering if there were any other young moms out there who deal with this-I just gave myself my Lovenox shot a few minutes ago. I have to do that when I am pregnant.

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Ashley - posted on 05/29/2009

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oh wow that's a lot of appointments. i dont go as often. i am 33 weeks and i've had 4 ultrasounds with my 5th on mon then one more. they were thinking about putting me on the needle everyday but then realised because i have never had a blood clot they didnt feel the need to, which i'm kind of glad because it's really expensive! i can def see how for you it would be tough being pregnant. my son doesnt have the factor v but all of my children have a 50% chance of having it. good luck to you as well!!

Emily - posted on 05/29/2009

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Wow, that is weird. My cousin's little girl has MTHFR, but when they tested her, they discovered she had Factor V Leiden also, which none of us have.

It is tough being pregnant, I have to take shots every day and go twice a week for ultrasounds and stress tests. It gets old, but it's worth it. Good luck to you!

Ashley - posted on 05/29/2009

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my son has it, i'm a carrier of it and my bf has it. very very weird how it all worked out. i have another blood clotting disorder which is called factor v leiden. which also gives me a higher chance of miscarrying, stillborn, placental abruption, preeclampsia and once the baby is born i have to give myself a needle everyday for 6 wks. we had nooo clue and we were only tested because my son was hospitalised at birth for 2 months and they thought he had a stroke. the rest of the family hasnt been tested and they wont be as it's not a routine test. it either came from my father or mother though. i'm happy we were tested as i'm currently pregnant and it's a high risk pregnancy so they are really looking after us this time around. dont worry your family isnt the only strange one out there....haha! jk

Emily - posted on 05/29/2009

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Thank you, everyone, I was just wondering if many other mothers had this, apparently my family is just stranger than I though :)

Tanya - posted on 05/28/2009

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I have never heard of this, I would like to know the full name too - if you don't mind?

Veronica - posted on 05/28/2009

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Could you please type out what the initials mean? Id like to take a look for myself if you dont mind....

Rachael - posted on 05/28/2009

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Simple explanation: it's a genetic defect that can cause re-occurrent loss of pregnancy and down syndrome in babies.

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