MAJORLY Premature Baby

Leanne - posted on 04/07/2009 ( 20 moms have responded )

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I'm not only a young mom to a brand new baby, but my baby was born 12 weeks early and has been in the Neonatal Intensive Care Unit since February 24th, 2009...anybody else in the same boat?

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Libby - posted on 04/10/2009

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I was in that same boat almost 5 years ago.  My son was born 10 weeks early.  He weighed 2 lbs & 14 ozs.  He stayed in the hospital for 6 weeks.  He is a healthy little boy who will be 5 next month.  I also had daughter in December, but she was 20 weeks early, way too young to live, she was stillborn.  If you need to talk and learn how to cope with the NICU please send me a message!  I'd love to chat about the NICU.  We actually had a very good experience there.  It made me a stronger mother!

Jennifer - posted on 04/10/2009

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Sorry, thought it was oxygen but I see it is a feeding tube..... that is AWESOME that he is not even on oxygen!

Jennifer - posted on 04/10/2009

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Hi! I had twin boys that were 13 weeks early. They weighed 2 lbs and were 14 in. They were in the NICU for 3 1/2 months. They both had NEC 3 times and had intestinal surgery. They also had laser eye surgery. Braden (now 3yrs) is doing quite well. He did not walk til he was 2, but now he is completely caught up. Logan had e few more problems and passed away when he was 1 1/2 old. It is a long hard road, but it will get better. Your little guy looks really good. I see he is already on oxygen, so things should be heading in the right direction. Good luck with everything and keep us posted!

User - posted on 04/10/2009

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Hi there! I had my second child born 10/17/08 and he was not due till 12/28/08. He weighed 2.9 pounds and was 15.5 inches long. He was in the NICU for 7 1/2 weeks. So I can surely sympathize and feel your pain. It was such a shocker for me because my first pregnancy 5 years earlier had no complications and he was 2 weeks early and very healthy. My pregnancy caused me to deliver early from high blood pressure (PIH). It was very hard to leave the hospital and not get to bring my baby home with him. It was a roller coaster ride. Even after he finally got to come home on 11/30/08 (my birthday) on 1/1/09 he was back in the hospital and they thought he had RSV. Well after a week of being in the hospital in the PICU it was determined that he had apnea (which he would stop breathing when he was sleeping and I never knew till we went to the hospital) which was caused from major acid reflux. He was sent home on a apnea monitor (which I love, I feel so much more relaxed and can sleep better knowing it will sound off if he stops breathing and it has---which can be scary just had to take control and handle it) He is now almost 6 months old and weighs over 12 pounds and is eating baby food and just a very happy baby.



 



Also while we were in the NICU he did have to have a blood transfusion which was scary but the nurses in the NICU were wonderful and became my closets friends.



I will pray for you and your son, pray works that is for sure!!! Any questions feel free to write me back. Take care!

Katie - posted on 04/10/2009

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Search for the "Moms of Preemies" community on here. We've all been through similar situations and everyone has a story that may help you. It's really nice to hear stories of people who've faced even worse challenges and are now doing great. There are a lot of people in the community to support you and answer questions or compare stories.

Stephanie - posted on 04/09/2009

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Wow Leanne, your little one seems to be doing REALLY well, you should be proud, they are such little fighters.  My daughter, Autumn is doing very good.  She has overcome all of her issues that she had while in the NICU, some similar to what your son has gone through.   The only consistent issues she had after coming home was reflux (gone now) and bottle feeding.  We had the hardest time getting her to drink enough formula so she has always been on high calorie formula and now pediasure.  She's 16 months actual and still not walking but she keeps up with her older brother well with her fast crawl :)  Thinking about all of the obstacles she's had to overcome, I don't complain about her progress, she is doing better than many other mothers that I've spoken with that had preemies at 25-27 weeks.

Liz - posted on 04/09/2009

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Yeah, we were able to hold our daughter a few days after they were born, but only for a little while because they didn't want her out of the incubator for too long.  We weren't able to hold our son until like three or four days after they were born.   It's amazing how resilant they are.  I couldn't imagine my life without them.  My daughter was discharged at four pounds 1 ounce and my son was discharged at four pounds 8 ounces.  It was a challenge getting used to such a small baby.  They were born the smallest out of all their cousins.

Leanne - posted on 04/09/2009

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I get to hold Hunter, we changed diapers, bath him, feed him (bottling and the gavage tube), cloth him...we can handle him like a newborn except can't walk away from the monitors, hehe. And he gets tired real easy so we don't hold him too much. But that's more a personal choice, other mothers hold their child a lot but we don't want to make him burn all his weight away.

Leanne - posted on 04/09/2009

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Aww, I'm glad to hear your children are doing good! It's crazy how fricking strong the little guys really are. A full grown human could not go through as much trauma in utero as what these tiny little people do, and they pull through with no evidence half the time. They're miracles. Thank you, I hope your children continue to do well!

Liz - posted on 04/09/2009

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Wow, he seems to be progressing nicely!  I wish the two of you all the best.  He's doing better than my son.  Ayden was on oxygen for seven days after he was born.  He then got off of it for a few hours only to be put back on it again, and was off it three days before he came home.  Good luck with your little wonder.  If you want to talk don't hesitate to message me. 



I agree, for my twins being early besides Ayden getting hit harder when they get sick , the only sign of their early delivery is the fact my daughter is wearing glasses due to her eyes.

Leanne - posted on 04/09/2009

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And wow, Stephanie, that's really amazing how much time your child spent in there. Sometimes I forget how many other people really do go through the same thing, and sometimes worse, than what I am. There are a lot of babies in the NICU's at all times, so unfortunately it's very common. Hunter is 35 weeks gestation today and 7 weeks actual on Tuesday. How is your baby doing??

Leanne - posted on 04/09/2009

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Hunter was 2lbs 1oz. They thought I was also starting to get IUGR while he was in the womb so at 27 weeks his head was measuring normal and his body was measuring at 25 weeks...it was a sign that the placenta was starting to not pass enough nutrients over so it's not really a huge surprise what happened looking back now. So he was a LITTLE small for his gestation but wasn't too much different. He also had his eyes fused shut still, which was a little strange because they usually open them at 24 weeks, but...maybe he was lazy. And surprisingly, Hunter was only intubated for the 24th of Feb, on c-pap for the 25th, on nasal prongs for the 26, 27, and 28th, and then breathing room air on his own ever since...he's a little trooper. He was just diagnosed with stage 1 ROP in his eyes, though, which is really a minor thing considering. And he bottled his first full bottle in his big boy bed (the cots in NICU - just moved out of the incubator!!)



But he's currently at 3lbs 8oz...so almost 4lbs!!! He could be home as soon as 2 weeks...which will mean he spent about 9 long, long weeks in there. So I'm very excited, but trying not to get my hopes up to much.

Liz - posted on 04/08/2009

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my daughter  was born at three pounds twelve ounces and was discharged at four pounds one ounce.   How much did he weigh when he was born?

Liz - posted on 04/08/2009

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My prayers are with you. I hope he continues to do well.  My son had to stay in the NICU for 8 days because he was born with underdeveloped lungs, and he was on oxygen for a while. He was born at four pounds 10 ounces and was discharged at four pounds 8 ounces.  My daughter had to stay in for twelve days because she was having problems gaining weight. She was only on oxygen for a few hours.  So far the only problems of their early birth is my daughter has glasses, and my son gets hit a lot harder when they get sick. He may possibly have asthma when he gets older too.

Stephanie - posted on 04/08/2009

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Congratulations on your beautiful blessing, my daughter was born about 12.5 weeks early so I know EXACTLY what your going through.  She's now 16 months old (actual) and 13 month (adjusted).  She was in the NICU for about 101 days.  Please let me know if there's any way I can help or any questions that you just can't seem to get answered.  Hang in there, I know it's a rough ride.

Coral-Leigh - posted on 04/07/2009

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he's beautiful, you must be a proud mommy :)
i'm only expecting my first in august but i will be holding thumbs for you and your little one as i can only imagine how scared you both must be.
stay strong!

Jamie - posted on 04/07/2009

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I think hes cute and it looks like hes thinking. My curiosity wonders, do you get to hold him? I also most had my son 10 weeks early when my water broke but managed to go full term. I remember how scared I was then.

Leanne - posted on 04/07/2009

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Thanks, he really is the most beautiful little boy I've ever seen, but I am a little bit biased. He's a miracle...really shouldn't be here so I'm just happy to spend my time with him...hospital or not. He should hopefully be home mid-May if he continues to do well. Did the twins have to spend time in a NICU or Special Care Nursery?

Liz - posted on 04/07/2009

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You have a beautiful baby. My twins were born six weeks early, so although I don't know all of what you are going through I can relate to some of it.

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