My baby keeps destating any help

Jasmine - posted on 07/24/2012 ( 3 moms have responded )

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My baby boy was born at 30 weeks and 6 days my water broke when i was 28 weeks i was very lucky to hold him in as long as i did. He went from being on bubble cpap to the ventilator to the cpap to breathing on his own and now at 34 weeks he just went back onto bubble cpap. The doctors have done chest xrays brain ultrascans heart echo and blood work test on him to see why his oxygen keeps destating low and he most of the time self recovers himself but when he drops to the 20's he needs moderate stimulation. They say he has mild fluid in his lungs and but him on 3 doses of medication to help flush the excess fluid from his body to see if that helps with his destats. I need advice im a first time mom and scared, im at the nicu with him all day and i hate leaving his side. when i leave i feel like a horrible mother cause im leaving my baby alone with the nurses. I dont understand how he could go from breathing and doing awesome for two weeks and do such a dramatic drop! advice please!!

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Valerie - posted on 07/26/2012

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Hi, Jasmine. I feel for you. I did not have the exact same experience, but my daughter was born at 28 weeks, and I definitely feel for you. I did the whole NICU dance myself, just remember they always say 1 step forward, 2 steps back. The nurses EXPECT it. Don't be afraid to talk to them, either. My daughter's nurses saved my life! My husband left me while I was pregnant and moved in with his new girlfriend while my daughter was still in the NICU, and I can honestly say I don;t think I could have survived without the support system of the NICU. They have seen so much, and they can help put things in perspective, empathize, and remind you that your baby WILL get better. Personally, I only spent a few hours a day at the NICU, and I feel more guilt about it now than I did then. But there is only so much you can do, especially when your baby just needs to rest and you might not even be allowed to hold him much. I know it's scary to hear all those monitors go off, just notice how the nurses react. That is how I could tell what was and wasn't as big of a deal. Obviously, low oxygen is bad, but they ALL go through moments like this. To give you hope, my 2 pound, 3 oz. daughter who at her lowest was only 1 pound, 12 oz., is now healthy and thriving with not even one single residual effect, as far as I can tell. Everyone is amazed by her constantly. This will pass, and this time will just remind you what an incredible blessing and gift your child is. Hang in there!

Connie - posted on 07/25/2012

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Oh and do NOT feel guilty when you leave him. Realistically you can not sit there 24/7. You have to take care of yourself too!

Connie - posted on 07/25/2012

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I can't give specific advice on your situation, because I haven't dealt with it myself, but I did want to say that my heart, and my prayers go out to you. Stay positive! I know its terrifying when your child, especially a baby, is hospitalized! Try to focus on the positives in every day though. I hope your little one gains enough strength to be able to be home with you soon, machine free! ♥

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