My son is going to be tested for Cystic Fybrosis?

Melissa - posted on 08/19/2009 ( 2 moms have responded )




I am so scared right now I honestly don't want the test to happen. How can this be my perfect son , my precious baby. I dont get it I dont smoke I didnt drink I try to be the best mom I can be I read to my son and daughter every night I love them till it hurts, Why am I BEING PUNISHED? Some moms leave ther babies out in the cold to die, abuse then completely mistreat them. Why when all I have wanted is to be the best mom I can be why does my son go through this. WHAT DID i DO FOR THIS TO HAPPEN TO HIM. Ijust want him to breathe like I do he can have it really I would trade for anything.


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Mandy - posted on 08/20/2009




Hi Melissa!

I can't imagine how it feels to go through what you and your family are going through! You ARE NOT being punished! The truth is sometimes things just happen and its not fair but its random! You did nothing to cause this! i am sure you know already but cystic Fyborsis is cause by gentics, yours and your sons dads. You could not have done any thing to prevent it.

You sound like you are a great mum, and your son is blessed to have such a supportive mum to help him through this! My twin cousins have cystic fybrosis and on the whole have and are living healthy lives, they got used to there symptoms and their medication pretty quickly and have achieved amazing things. An old school friend of mine also has cf and climbed Ben Nevis in Scotland for charity a few years ago.

Take one day at a time and remember whether he has it or not he can still live and fullfilled and happy life!!

Good luck and i wish u all the best x x x x

Bronwyn - posted on 08/20/2009




Hi Melissa, that sounds just horrible. I understand how you feel though, why do moms who look after and try to give the best to their children have to suffer?? Please join my facebook group called For Jonathan Hartley and other children and share your story. I will pray for your little boy!! I wish you all the best!!

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