night terrors? seizure?

Riashaw - posted on 08/08/2013 ( 3 moms have responded )

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my son is 10. a few weeks ago on vacation after he had a handful of candy a few hours before sleeping, he was in the car sleeping while i was driving. suddenly we heard him give a little whimper and when we looked back at him he was wide eyed and trembly - he absolutely would not wake up, my husband yelled to him to get his attention but he just didn't come out of it. when he finally did we made him stay awake until we were done driving, and then we had him drink a few bottles of water and have a bowl of cereal and a shower before going back to bed. scared and concerned we kinda chalked it up to lack of sleep and an overload of sugar (we never let them really have candy or soda...) as i know he was fine that night, and has been since, we've not heard a peep out of him.

this past saturday we were out a bit late and had a long day at a family gathering, and i hate to admit it but i'm sure he didn't eat very well, i know he had several pieces of chicken and he said he had a taste of "this and that" but didn't really like any of it. but i'm sure he may have indulged on sweets and soda. sunday morning at just a pinch past 8am we awoke to him screaming. i was afraid there was someone in his room attacking him. i ran up to his bedroom to find him in what i believe was a seizure, he was on his back, all color washed from his complexion, shaking and gurgling. i picked him up and kinda held him in an upright position because i was afraid he was choking on the junk in his mouth and he continued this way for about a minute or two. when he was done he was kinda unresponsive, not quite sleeping because he wouldn't wake up, and definitely exhausted. we took him to the er right away and for i think near 2 hours he was just kinda "lazy" and lethargic, he had no complaints, no knowledge of any bad dream or weird behavior or body aches or anything. his labs came back within normal parameters and his ct scan is perfectly fine according to the dr at the er.

he was fine all day sunday. i made sure that he ate "perfect" - high protein, low carb, low fat. that night we put him to bed thinking ok he'll be fine. at about 10, an hour after going to bed, we heard him crying like a baby, my husband went up and he was shaking again. so he brought him down to our bed so that we could watch him through the night. that night he had several incidents where he tossed and turned a bit, legs and arms moving at times, and several times went wide eyed and jolted up to a sitting position. i tried talking to him nice and calm and gently, telling him its mommy, hes in mommys bed, everything is ok and hes safe, please remember to try to take nice slow long deep breaths. monday morning at about 830am he had another incident that looked like a seizure to me, it started with him rolling to his back and opening his eyes really wide - he had the look on his face as if he was very scared - i thought he was about to seize again so i rolled him to his side, and even then he seemed fixated on the ceiling and turned his head to look up at it, he pointed with his hand up at the ceiling and then screamed - then went into a seizure i thinkg - eyes moving rapidly left to right, body shaking. after that he slept for about 2 hours. then again was fine all day long

monday night / tuesday morning he did the eyes wide thing an hour after going to bed, then half an hour after that, then slept the night till about 6am. that night i had asked him if he was afraid or excited about anything, the second one he had he did actually talk to me right after it, even though he seemed to be kinda sleeping/drowsy and he said mommy what was that thing that grabbed you this morning? but went right to sleep immediately and i got nothing else as a response from him. he woke up at about 730am and was totally fine all day

tuesday night / wednesday morning he did the eyes wide thing about an hour and a half after going to bed but then was totally fine the rest of the night. tuesday during the late afternoon my husband had him doing quite a bit of physical activity even though i was terrified that it might be bad.

wednesday night / thursday morning he did the eyes wide thing 5 times through the night, an hour after bed, 15 minutes after that, again 2 hours later, then again at 5am. when he woke up at 730 he was totally fine and said he really felt great. wednesday during the day i kinda kept him calm and wouldn't let him do hardly anything at all.

we have an appointment this coming tuesday (5 days from now!) with a neurologist. at first i was kinda upset that we weren't able to get an appointment the same day but now i'm thinking maybe it is better that we have a few more days to observe him and be able to give the doctore some more information.

from reading things, i think he may be experiencing night terrors and that a few times they were bad enough to induce a seizure, but i'm not entirely sure. if there are any parents or physicians out there that can talk to me a bit more about this i would be so very thankful..

there are no disorders that run in either of our families so far as we are aware, and we hve been asking everyone for days. when i was a kid i know there were some times when i had some bad dreams that i didn't really remember the details but i do remember waking up crying and/or scared. when i was pregnant with him, i had some pretty bad dreams too where my husband woke me up because i was crying hysterically in my sleep.

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Melissa - posted on 08/09/2013

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I actually have had a couple of episodes of being "sweaty, shaky, rapid heart beat, trouble breathing" myself. (I had gestational diabetes with all 3 of my pregnancies so I still have a monitor). When I checked my sugar, it was at 40 one time, 42 the other, and 30 one time. So, I would definitely call your Ped and have him tested. Hypoglycemia is actually much more dangerous then hyperglycemia - hypo is the one that patients can go into diabetic comas from :\

Riashaw - posted on 08/09/2013

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I was curious of the same thing, since he rarely has anything high carb - between him generally only ever wanting to eat chicken and fruit, and me never having sweets and soda in the house.

At 9am in the emergency room they tested his electrolytes, and glucose was 116. They said the normal range is 100-120 for this particular test, so he's in the normal range. I though it seemed high, especially 13 hours (+) after his last food/drink. He's been having these "wide eyed, breathing fast, shaky, sweaty" incidents every night since. But is fine come morning and fine all day long.

Melissa - posted on 08/09/2013

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Hi,

This sounds so scary and I am sorry you are experiencing it. I'm not a Dr., or nurse, only a Red Cross trained First Responder, so I am just throwing out an idea here:

Has he ever been tested for diabetes? Some of these behaviors remind me a lot of someone who's sugar has dropped out, which can cause a diabetic seizure.

Like I said, I am not a Dr. so I can't diagnose, but, personally, if it were my child, I would make him an appointment immediately to test for this. If he does it again before you get the appointment, give him something very sweet - cookie, candy, regular Coke/Pepsi/etc., even a spoonful of sugar.

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