Please help, looking for information A.S.A.P. for baby due in Jan/Feb 2010

Elizabeth - posted on 09/01/2009 ( 6 moms have responded )

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My friend recently had been having early pregnancy bleeding and was tentatively diagnosed as having placenta previa. After a consultation yesterday, she and her husband were told the placenta is attached to one side of the uterine wall and the cord to the other. Both are healthy and functioning, but what is more of the concern is the baby's condition.



She said that all of his bones in his arms and legs are too short. His (the baby's) vertebrae is calcified properly in the middle, but if you look above and below that it's not. His penis is also short. A picture of the scan of his brain is still in the area that we would call normal, but just barely which means there is a possibility that this area of fluid in the brain (which we all have apparently) could become too big. Not only are the bones in his arms and legs all too small, the bones in his rib cage are also all too small. This means his lungs can't develop properly and there is a good chance that he won't be able to survive after being born.



Doctors at Johns Hopkins do not know what this condition is called and have told the couple all they can do is monitor the baby and wait for it to come. The couple needs to under go testing yet to rule out genetic complications but JH believes that the problem is not genetic.After the child is born (and maybe during prenatal care) then a course of treatment may be determined if the child survives.



Has anyone heard of this? Dealt with this? Any advice you have would be helpful. Thank you in advance!!



Elizabeth

6 Comments

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Chantel - posted on 09/03/2009

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I don't know anything a/b this condition but I will keep the family in my prayers.

[deleted account]

Im clueless on this one, but my most sincere sympathies are with the parents to be.... may god help them!

KM - posted on 09/03/2009

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I had a friend who had a baby boy with numerous complications and delivered him stillborn at 22-24 weeks. The best thing I can say is that faith (whichever faith these parents have) can produce miracles and should the worst happen know this: families are eternal and God will care for this child who will await his or her parents in heaven (or wherever they believe in)

ps - I have experienced my very own miracle after two very difficult miscarriages. I was told I'd never bear a child do to my conditions that seemed to inevitably pass to the poor child I was trying so desperately to create. My third child was born amazingly healthy despite my many complications, and it was worth everything I went through to get there. So please, above all tell these parents not to despair and lose hope anything can happen!

Jess - posted on 09/01/2009

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i had a friend who had placenta previa and it can be monitored the whole time during the pregnancy and can still be fixed if need be.. as for the other problems im not to sure. but i do hope that whatever happens the parents get through this..

Jana - posted on 09/01/2009

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I have gone through something similar to this. My first pregnancy at 20 weeks I found out that my son wasn't growing properly. He had heart problems, too much fluid in his head, one over-sized kidney and much more. The doctors told me that they were 99% sure that he wouldn't live through the birth and if he did, he wouldn't live through all the surgery that he would need. So I made the decision to be induced and have him he was born stillborn. The problems that my son had were not genetic, I had an amniocentesis. I have 2 beautiful boys now and they both know that they have an older brother in heaven.

I know that my son may not have the same thing as your friends baby, but I know what it's like to not know what is going to happen. I don't know if your friend is religious at all, but I am and that is how I got through my experience.I'm sorry that I can't offer more advice. You can message me if you want to talk. I will be praying for your friend and her baby.

Hailey - posted on 09/01/2009

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ive never heard of this but my heart goes out to the parents , hope the baby comes out ok xxxxxxxxxxxx

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