Hi Alicia....

Amy - posted on 03/11/2009 ( 8 moms have responded )

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My second (and last) son developed pyloric stenosis at 14 days old. It was very scary, since I had never even heard of it before this happened. I noticed I am the first person to join your group, but I know there are a lot of parents out there who have had to deal with the terrifying experience!



I look forward to sharing with you and any other parents who are going through this!

8 Comments

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Trisha - posted on 12/03/2016

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My husband was the third born and he developed it. His third child developed it also. It's sad that it takes the doctors so long to diagnose it.

Andrea (Andie) - posted on 02/01/2012

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Sorry Ladies, I have been busy. We just had our 2nd son and I am waiting to see if he is going to have PS. So far he isn't showing any signs like my first born did. Keeping My Fingers Crossed!

Andrea (Andie) - posted on 05/12/2011

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My son Michael had Pyloric Stenosis and almost died! He had always vomited from the day he was born and we changed his formula only twice. He was born on 1-12 and by the time 3-1 came along I knew something was wrong. I had been telling and so did my husband about the amounts of vomiting he was doing and everyone even our Pediatriician said that every child vomits, Well I had him to the the dr. on wednesday 3-3 and by the night of 3-4 Michael was vomiting blood and I knew something was wrong. We got him to the hospital and sat there for 2 days before the desided to do anything for him. After 5 IV and 6 days of no sleep for me or my husband I was feed up! I flipped and I normally would never do this, But I had enough! I demand something be done! So finally some doctor that was only visiting someone in the next room over from Michaels over hread what was going on with him. Came over to and recommended Michael drink this white drink (I forget the name of it) and have a belly scan! Not even finisihing the bottle of the white drinki Michael vomited everything back up and finaly there it was on the scan total blockage and a straight answer! THANK GOD For UPMC Childrens Hospital in Pittsburgh, PA they saved My sons life. We were also told while we were there that Michael was very lucky to be alive and that Pyloric Stenosis can often be mistaken for Acid Reflex and that more than likely when Michael has is first born son he will have it. If you have that gut feeling like I did with Michael please, please, please demand something to be done for them!

Charlotte - posted on 04/05/2011

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my daughter had the surgery at 2 months, 6 years ago. She had it from 4 weeks on, the doctors never caught it. They just kept changing her formula. She was 9lbs 8oz at 2 months, she weighed 7lbs 11ozs at birth. I called the pediatrician the day before her surgery. He told me to give her pedalyte, that she was just sick. When she vomited that up, I took her to the emergency room, All Children's Hospital said that they didn't think she had it, because she was too old and second born girl. They did an ultrasound and found it order surgery for next day. That night in the hospital she was vomiting up the lining of her stomach. She stayed in the hospital for 6 days and was on 3 medications for 3 months, because her stomach was raw inside for having it so long. No one else has this in our family. She is a healthy 6 year old now, all she has is two little marks on each side of her stomach and her belly button is an inny/outie.

Amy - posted on 01/01/2011

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Hi Hillary... Nice to meet you. I was reading the other day about pyloric spasms! How very interesting. My son has just recently started throwing up for no apparent reason and it worried me, so I did some research. I don't think that this is his issue, but again, I had no idea that it was even a possibility until I read Alicia's post.

Happy New Year to you all!

Hilarry - posted on 12/29/2010

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Hello Ladies!
My Son Carter who is 18 months also had pyloric stenosis at 14 days, we have an older 10 year old son as well so Carter was one of those second borns to suffer as well.
Look forward to talking with you all on how our little ones are doing as they grow!

Amy - posted on 03/24/2009

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Oh, my son who had this is now almost 18 months old. He's doing great and you would never know he'd been so sick. He's 30" tall and 27 lbs. Before he was diagnosed, I thought he was going to starve to death. It took them two days to get him stabilized so he could have surgery. Nice to meet you. Talk to you soon!

Bloodraven87613 - posted on 03/14/2009

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 I'm glad to hear there are other people out there going through this and willing to talk about it.  My daughter was 3 weeks old when we found out officially but she started showing signs of it at 2 weeks old.  After her surgery she developed what's called pyloric spasims which is VERY rare after a surgery like what ours went through.  Turns out both disorders run in my family and she just got the short end of the stick.



How old are your two boys now and how've they been doing?



 



  I'm glad to have you in the group, thanks for joining.

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