help please

Courtney - posted on 01/18/2010 ( 1 mom has responded )

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my son is a 5 year old with advanced bionics CI he HAS HAD MANY PROBLEMS WITH THEM he only had his right CI for 5 months then they took it out for infection he has has his left Ci for 4 years and has had 6 surgeries most recent surgery was 1 month ago he is saying his implant hurts and crying he is scratching at it also it is so swollen every morning that he has to sit up right so the fluid can drain so his implant will stick to his head. i have taking him to many doctors including the ER on friday and the only answer they have is "I DONT KNOW" has anyone else been through any of these problems its not normal and i need answers?????

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Calley - posted on 01/18/2010

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could he be allergic to the silicone or other materials in the implant? we've not had this issue, but it certainly sounds serious. what is your CI Team and Dr. saying about it?

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